Hi JG, first of all I'm not sure if you are a man or woman not that it matters except I wouldn't want to say anything silly if your and man. Anyway the first thing I suggest you do is take a deep breath. Let it out slowly. ok
Now to answer your question I can tell you one thing for sure. No one can answer your question. Because no one knows. The doctors probably don't know and that is why you are getting moved around so much. A lot of times the only thing they can do is treat the symptoms so you will find a lot of people here that see different people for different symptoms. You may have Lupus or some other autoimmune disease. You tests show that there is a good possibility that somthing is going on. It could litterally take months to years for enough symptoms to manifest for a doctor to come to a conclusion. It is the most frustrating disease I can think of. Some people have possitive ana's and not have lupus some people have neg. ana's and have it. it's only one of many tests. It's good that you want to read up on this stuff but I have been at it for 2 years and I still don't know have of what some of the people here know. That's why the group is so good. Someone here will have the same symptom and be able to give you some insight. I know one of our moderators suffers from vertigo and I'm sure she can help you with that. Your sed rate can go up and down like a yoyo. All that means is you either have some type of infection at the time your blood was taken or you don't. Mines gone from 68 to 7 in a matter of a few weeks because I started on meds. I think you should really keep pushing for the rheumy and if the one is of no help find another. They should at minimum give you something for your symptoms. You should not have to suffer just because they aren't prepared to come up with a DX. There are drugs out there that are pretty safe such as plaquanil which is one of thefirst drugs they give when they suspect many diferent autoimmune diseases. You may ask about it. It takes a long time to help but in most cases it does help. also even though it's a crumby drug possibly a small dose of predisone would be helpful for your muscle aches. I'm not trying to prescribe anything I'm just throwing out a few drugs that most of us take that seem to be a life saver in many cases.
Anyway I'm sure others will be around to help out and more important than that I want to give you a huge WELCOME TO THE GROUP!
Possible scleroderma. stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12
Did you ever know that your my hero?