Paranoid Chronie

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Regular Member

Date Joined Aug 2008
Total Posts : 63
   Posted 9/26/2008 10:03 AM (GMT -6)   
im hoping someone can help ease my fears so to speak. I want to ask my doctor to test me for lupus but dont want her to think im a paranoid android.
My aunt died of lupus years ago and i only found out recently.
I was diagnosed with Crohns last April and i am on prednisone,entocort and pentasa for that aswell as calcium and iron.
My doc doesnt know there is a history of lupus in the family (i myself have just found out) and im thinking i should be tested for it just in case.
my main reason being is that i get this mysterious rash,joint pain,  coupled with fatigue, tiredness, confusion etc etc. Now i know alot of these issues can be put down to the crohns but im a bit concerned now seeing as ive discovered there is  a history of lupus in the family. Do you think it is reasonable to ask the doctor just to put my mind at rest?

Veteran Member

Date Joined Jan 2007
Total Posts : 610
   Posted 9/26/2008 2:43 PM (GMT -6)   
If I were you, I would ask. It doesn't hurt to have it checked so to put the mind at rest.
DX SLE 1988; Pred 10mg, Cellcept 2500 mg, Verapmil 120 mg (for migraine headaches), Famotidine 20 mg BD, Volteran 150 mg (temporary), Calcium + Vitamin D 1200mg

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Date Joined Feb 2003
Total Posts : 5514
   Posted 9/26/2008 4:37 PM (GMT -6)   
Hey Roxette,
It never hurts to run these things past your rheumy, especially if you have the symptoms.  Just remember that there is no single test that will confirm or rule out lupus.  It's a combination of a bunch of things.  Lupus is the "great mimicker".  Your chron's will present many of the same symptoms as lupus.  Any blood tests will also show activity of something autoimmune, but it could just be your chron's.  You'd get the same results back for either disease. 
One set of blood tests you could ask for are the anticardiolipin antibody and antiphospholipid antibody tests.  Those two are very specific to lupus.  Both are blood clotting indicators.  In many people with lupus, the disease will produce a protein that causes the blood to get thick and sticky.  I"m not entirely sure if these tests are common in chron's. 
Testing for lupus can take you down a long and winding road of frustration.  If you're going to go there, just be prepared!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/27/2008 8:59 AM (GMT -6)   
Hi Roxette,

You got some good advice above. I would only add that, sometimes, prednisone can cause your ANA to go back to normal. That would be one blood test the doc might order to help rule out lupus.

Also, there is a link at the end of my signature "4 of 11" . This will show you the 11 criteria for dx lupus. You are said to have lupus if you have 4 of the 11.

A rheumatologist would be the doctor to see for Lupus. It can be a real tricky thing to figure out what is going on and the rheumy is the master at this. There is another link at the end of my signature to find your local lupus foundation chapter. If you click on that link and find your local chapter, they can give you a list of rheumatologists in your area who may specialize in lupus. I highly recommend using someone from that list. Also be aware that it may take a couple months or more to get your first appointment. This is very common.

I hope you'll keep us posted.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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