Hi everyone, thanks for your suggestions.
the time I posted, I thought of taking some Xanax - it helped a lot and most of the pain is gone (so far) today with the exception of my lower back -- which I think is a partial injury from assembling a new dining room table last Monday.
In the interests of full disclosure --
I didn't hit the ER as most of my body was only a 5 pain level yesterday -- it was the duration that was getting me down (and each day a level was added!). I don't know that I have an "on call" doctor -- partially as I have *never* had to take pain medication before, so there was no established protocol for a 'new' doctor to follow.
As with many of you, I have to take several pills each day. I count them out 6 weeks at a time, and each time I count them it seems like I have to come to terms with having a chronic illness all over again. So sometimes it's just too hard, and they don't get counted for 4-5 days (and I don't take them if they aren't counted). So I hadn't taken my meds since Tues or Wednesday. (Yeah, I finally counted yesterday, and am back on schedule today.)
While it may be or may not be a flare, this pain is certainly different - mostly as I haven't had much pain previously. It matches more with fibromyalgia symptoms than lupus...it's only 2 weeks till my regular rheumy appointment, and I'm going to talk with him then about
maybe getting a standby pain medication to have on hand.
As for the "Why did you stop Cellcept?" question -- I was taking Cellcept in a wild attempt to stop some serious cognitive issues that were increasing rapidly -- not what it was intended for at all. It is actually a big-guns immuno-suppressant used in transplant cases. Once the cognitive issues begin to improve, we stopped the Cellcept. Unless *required* by a transplant, it is strong enough that it is not supposed to be used more than 1.5-2 years. We stopped mine at about
18 mths, and that was well over a year ago.
Meanwhile, the suggestions for Percogesic and alternating acetaminophen/ ibuprofen make sense -- although I am curious why doubling my normal dose of Piroxicam didn't seem to have any effect.
I'm so glad for the quick responses -- if I'd woken up today feeling like I did last evening I'd be out roaming the drugstore isles again today! (Last night I went out & got an additional heating pad & a new kind of topical analgesic.)
Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg),
Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
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