thanks to all of you educating me, I can and will take a more active role in my disease(s). I have the two blood tests written down that you told me about Ginny, and I have the 11 symptoms of Lupus that many of you provided, written down, and there is six of those symptoms that I have.
Not until I read a new person's post did I realize what you all meant when you said you had loss of hair. I thought you just meant loss of hair on the head. but apparently this is not the case. I have no hair on or under my arms, and none on my legs. And this has been the case for years. I thouht the loss of hair on my body was due to age.
I have quit taking arthrotec for awhile, because I saw blood in my feces. My heart doctor warned me that this would happen, and that when it did, I would have to stop taking it and other meds like it. that leaves narcotics, and I do not wish to start them. but may have to. But for now, I am just letting the days pass, and see what happens, when arthrotec is out of my system.
Haven't done much this past few days except lay on the bed. Heart burn so bad at night it is excruciating.
Thanks to all of you again. Will let you know what my GP says tomorrow, and when he gets the results of the test tHat I am going to ask him to take. aout ten days I think
Next month will be really busy with two tests on my heart, and vascular system, and then a sit down with the heart doctor on the 22. and on the 23rd I will see the rheumy again. And hopefully i will have enough info by then to question his questioning of why i might not have lupus. I do understand his hesitancy, but I don't understand his efforts to disallow the diagnoses contemplation at all. After Dr. Marlowe died, my tests were not positive enough, so I probably did not have lupus. Now they are more than positive enough, and it still isn't enough. Not going to get angry though, just ask him questions.
most of you waited for years too, to get the dx of lupus, and because you did it before, I feel as if I can do the same.
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin, multivitamin, Arthrotec , Meclazine , plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid, Amlodipine, Crestor, Lasinopril, Plavix, phenagrin, Restasis