Well I had my appt. with my internist today. she thinks that I have either Lupus cns with vasculitus or MS. so she is scheduling a brain MRI to see. she is referring me to the only good rheumy in our area, a neurologist and a hemotologist for the myelofibrosis and is sending him info on the lupus -myelofibrosis connection. She said she refused to let me hang in diagnosis limbo!!! so at least that is something. she also told me that I could adjust the prednisone to what ever I need.
I can say for a fact that the prednisone cured my unintentional weight loss oh well, if I get skinny but can't get out of bed, what good is that!
This is me staying positive!
She sounds like a really good doctor. so glad you found her. She doesn't want to leave you in limbo, tells you to increase the prednisone as you need it, and she is getting closer to a definite diagnoses.
Please let us know how this turns out. I don't know much about MS, but know that it hits some people really hard.
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin, multivitamin, Arthrotec , Meclazine , plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid, Amlodipine, Crestor, Lasinopril, Plavix, phenagrin, Restasis