thank you ginny for the answer to my question. It would make sense for this to be true. And I am guessing maybe the doctor will test me again too. And if it is a better result, it will mean I am getting better. And Lord knows I would be most thankful if I could only get better. especially this brain fog.
Hester that is a great question to ask. Yes, once you've started treatment, the meds can mask what is going on. Only because you're starting to get better!! So, even if you don't have a definitive diagnosis, if the treatment is working and your labs are coming back improved or much better, that is a terrific indicator to you and your doctor that the treatment was neccessary.
I think it's really important for everyone who is waiting on a name for this illness you have, to know that if the name Lupus never gets used or put in your chart, it doesn't mean you don't have it, it might also mean that you have a mixture of inflammatory disorders that overlap each other. That's called MCTD or mixed connective tissue disease. I know it's important to have a name for your illness, but when you're dealing with these types of AI diseases, sometimes MCTD or UCTD (undifferentiated connective tissue disease) will be used instead of just Lupus. Regardless of what the name ends up being, the treatment is the same.
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin, multivitamin, Arthrotec , Meclazine , plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid, Amlodipine, Crestor, Lasinopril, Plavix, phenagrin, Restasis