Hester that is a great question to ask. Yes, once you've started treatment, the meds can mask what is going on. Only because you're starting to get better!! So, even if you don't have a definitive diagnosis, if the treatment is working and your labs are coming back improved or much better, that is a terrific indicator to you and your doctor that the treatment was neccessary.
I think it's really important for everyone who is waiting on a name for this illness you have, to know that if the name Lupus never gets used or put in your chart, it doesn't mean you don't have it, it might also mean that you have a mixture of inflammatory disorders that overlap each other. That's called MCTD or mixed connective tissue disease. I know it's important to have a name for your illness, but when you're dealing with these types of AI diseases, sometimes MCTD or UCTD (undifferentiated connective tissue disease) will be used instead of just Lupus. Regardless of what the name ends up being, the treatment is the same.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus