((((((((( Sherry )))))))))))))
Yes . . . it is such a puzzle, isn't it??
I wonder if it would simplify things if you could identify the symptoms that you would like the doctors to treat.
Sometimes they are still working on the puzzle and they simply treat the symptoms. You do have so much going on. *sigh*
I wonder if any of your doctors would consider starting you on plaquenil. You won't get any immediate results, as it take up to 6 months for it to fully build in your system. But most member in the Lupus and RA forum are on it or have been on it. Majority of us will use it for life. It works on systemic inflammation and may help even your facial rash.
Do your symptoms flare after being in the sun? That's pretty common in lupus. I used to get rashes just from going down to the mailbox. I had to wear long sleeves even in the car and carry an umbrella. More recently, I've not been so sensitive . . . but I think its the plaquenil working as I've been on it for a very long time.
Anyway . . . I hope some of the others have something more enlightened to share with you. I just feel so frustrated for you.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator