Posted 10/2/2008 8:01 PM (GMT -6)

The folks at the Crohn's forum have said that while they are flaring they eat non-fibrous foods including white rice, mashed potatoes, bananas, boiled chicken, and meal replacement drinks like ensure and instant breakfast.

I find, that when I'm flaring, even water causes trouble. So I really real for you. I just try to eat extremely light. I'm so thankful that things have been quiet down there. *phewwwww*

You might stop into the Crohn's forum and peak at some of the posts about food. It varies greatly between members as to what they can eat when flaring.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Posted 10/2/2008 8:32 PM (GMT -6)
Again, I hate that you're flaring hippimom -- you might want to plan ahead and take 2-4 mg extra pred when things get busy at home BEFORE you start feeling so crappy? Just a thought & something to ask the doc about.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Posted 10/3/2008 12:07 AM (GMT -6)
Sorry you aren't feeling well, hippimom. And prednisone is such an up and down thing. I pray you get some bursts of energy or that the kids can help you. My mom was in an auto accident when I was eight and my dad HAD to work and he was on the road alot. My sister was eleven. My grandmother helped some, but my mom was paralyzed and had her face wired together so she was really bad off. Anyway, we learned to do alot. Sometimes kids like to help, especially if you can do a little allowance thing. I know they have problems too, but like the others say, if you get bad, then the kids have problems.

Having had one polyp already (I got told I was way too young for this stuff, like duh) I think you should try to get checked out. You might be right, but if you have an infection or something things might get worse. Rosie is right that the colon is a big deal and seems esp. vulnerable. Do we ever catch a break? Anyway, I wish you and your family the best during this difficult time and hope you can rally some help from the kids.

One thing I'm doing is simplifying my house in advance. I'm saving for a side by side frig and stackable washer dryer because bending over is hard for me. I'm also doing low dust, low maintenence, so cleaning is easy. Its a process and I've had to get rid of a lot of knick knacks, but I just can't manage it all anymore and stuff is just gathering dust and creating stress. I made my bf and son do the same thing and they didn't seem to mind. Anything you can think of to simply life and make things easy---cooking in advance and freezing cassoroles, cooking a lot at once and freezing, prepared foods and sandwichs, anything to make life easier. Alot of that stuff is expensive, but there's come a point, at least with me, where my priorities have to shift from home maintenence to living and enjoying life.

So I understand completely. I hope you feel better soon and that everything is okay.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

Posted 10/3/2008 5:38 AM (GMT -6)
Hi Hippi. I'm so sorry you're having such a rough time. I think Rosie, Carol, Marji and Lynn have some great suggestions. I have one more: have you tried methotrexate, imuran, or cellcept? I've been on each of them to help control lupus. Just last week, I told my rheumy that I tried decreasing my pred from 7mg to 6mg (the crucial dose when adrenal glands kick in) and I flared. I've been on 2 grams of cellcept daily since January. Rheumy advised I increase cellcept as tolerated until I reach 4 grams daily and then decrease the pred. My point is, prednisone isn't the only drug in our arsenal as long as you're willing to try something different. Regarding the other suggestions, mommy guilt is a hard thing to break. I know you want your kids to have the best life possible. I wasn't able to break mommy guilt and now I'm in sucker parent mode: supporting my 23 y/o daughter and fixing all her problems. BTW "sucker parent" is the term my shrink called it and she said I must force Tory to grow up for her health as well as mine. I'm working on it. Try to take care of yourself Hippi. I'm sending you lots of positive energy, prayers and much love. Butterflake 

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture

Posted 10/3/2008 8:51 AM (GMT -6)
Thanks Lynnwood, Marji and Donna, and thanks Rosie for the food ideas. Lynnwood I like your idea about planning in advance.

I know I'll get through this flare. I looked ahead on our calender and it looks like things should slow down a little bit in about 2 weeks. Until then, I'll adjust my meds and get extra rest. I've been doing better about laying down after lunch and resting/sleeping until the kids get home from school.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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