Sorry you all have had such a hard time with this. I agree Hester, I think the plaquenil does help.
I had to be in the Sun yesterday, paying bills, and stuff, and as sore started in my mouth, and I thoiuht to myself, "Okay this is it" plaquenil is not going to keep working" but this morning it is gone. Plaquenil is good as gold to me.
And I figured out why one walmart store is so hard on me, and the other one, the one I went to yesterday, is not that bad. Skylights. The newer walmart uses sky lights to help the flourescent lights to light the building. not as many flourescent lights to make me sick.
But by last night I had the nausea, the weakness, the achy feeling, and the mouth sore. This morning it is all gone. This is remission to me. I can handle the little flares due to being in the sun and stuff. I can plan for it, and give myself the time to heal from the little flares.
Sure glad I did not stop taking the plaquenil because of fear of it hurting my eyes.
I feel really good yall. and when I feel really good, sometimes I write too much
There are still things I simply cannot do, and I don't try. but for the most part, compared to when I first found this forum, I am in good shape.
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin, multivitamin, Arthrotec , Meclazine , plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid, Amlodipine, Crestor, Lasinopril, Plavix, phenagrin, Restasis