Lupus Anticoagulant

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New Member

Date Joined Jun 2007
Total Posts : 13
   Posted 10/3/2008 3:28 PM (GMT -6)   
What does this mean exactly? I tested positive and have been looking it up on line. My Rheumatologist says this can be a cause of my numbness and tingling, but all I have found on line has to do with clotting. Does anyone have any information on this? I'm just so tired of not having a clear answer and something always being off...
Hashimoto's Thyroiditis, Pernicious Anemia, Undifferentiated Connective Tissue Disorder, reynoids. Monthly B-12 shots, Plaquenil prescribed, but haven't started on it yet. All diagnosis within 10 months. Positive ANA with a nucleolar pattern. Rheumatoid factor is sometimes positive and sometimes not.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 10/3/2008 4:56 PM (GMT -6)   
Hey Steph,
I have lupus anticoagulants too.  The anticardiolipin antibody,and the antiphospholipid syndrome (APS).  Having lupus anticoagulants means you are at a high risk for blood clots, stroke, heart attack, etc.  Parts of the cells in your blood are creating proteins to make the blood thick and sticky.
Has your rheumatologist discussed the next course of action for you?  Are you going to be taking a daily aspirin, or more potent blood thinners like Warfarin (Coumadin) or Heparin? 
My blood wasn't treated fast enough and I ended up having a stroke at the age of 28.  It's really serious.  I hope your rheumy isn't just brushing this off....
All I can think of with the numbness and tingling you have is that your blood is too thick and you're experiencing symptoms of a TIA (trans ischemic attack - also called a mini stroke). I don't want to scare you!  But testing positive for this is serious.  Getting the right treatment as soon as possible is in your best interest for sure.
Let me know if you have any questions okay,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 10/4/2008 8:50 AM (GMT -6)   

Hey Steph,

I don't know much about this either, except what Ginny has told me.  I would heed her advice, and try to get some blood thinner as a daily med.  I am waiting for my blood results to see if I have this too.  I hope I don't, but if I do, than there isn't much I can do.  i already take plavix due to a stroke that I had in 2002.

I can't understand why your doctor did not give you medicine for this already. 

take care, and let us know how things turn out.


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

Regular Member

Date Joined Aug 2008
Total Posts : 56
   Posted 10/5/2008 1:14 AM (GMT -6)   
Hey Steph,

I also have just been told about being at risk for clotting issues...I go back to Johns Hopkins in 2 weeks and will know more...I will try to remember to let you know what I learn.

From reading your post's we sound like we have alot in addition to both being Stephanie and born in 1977!

Email me, lets chat!
31 year old mom of 1: SLE, UCTD, FM, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, Costrocondritis(?), a bunch of other stuff I don't remember right now and even more labwork I dont understand! Patient at Johns Hopkins in Baltimore, MD.
 Plaquinil, Trazodone, Lidoderm, Percocet for now...I hate taking the meds!  Refusing any more Prednisone!

Regular Member

Date Joined Mar 2007
Total Posts : 194
   Posted 10/5/2008 5:03 PM (GMT -6)   
SSDore I tried to find a way to email you and it seems you havent posted it or I havent figured out healwell yet. I also go to JHU and am a patient of Dr. Petri. My daughter was just dx with Lupus as well and she is 13. Its been hectic around here but I would like to connect with you. Can you email me?

Regular Member

Date Joined Aug 2008
Total Posts : 56
   Posted 10/12/2008 7:45 PM (GMT -6)   
Hey Steph,

Wow...we gotta talk! I can't figure out your email either...Mine is SSDore9240 at aol dot com

Can't wait to chat!


(post edited to help disguise email address from web-bot which collects email addresses in posts . . .I hope you don't mid Steph, but it isn't safe to put our email addresses in the posts. You can edit your profile and include it there if you want. Blessings!)

Post Edited By Moderator (AlwaysRosie) : 10/12/2008 7:05:10 PM (GMT-6)

New Member

Date Joined Feb 2007
Total Posts : 17
   Posted 10/13/2008 9:43 PM (GMT -6)   



I also have the Lupus Anticoagulant.  What that has meant for me is that I have had multiple miscarriages and I threw a small clot in my liver.  I have never had a stroke but I have only had it for 5 years.  My new rhuemy wants me to have an MRI of the brain and to see a Hematologist that specializes in that.  When I get pregnant I have to have Heparin inj. twice a day increasing the dosage every couple of weeks.  I also have tingling in my appendages and numbness from the Raynaud's.  None of my doctor's have ever said in was because the thickness of the blood.

That all I know hope it helps.


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