Looking for help for my mom!!!

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New Member

Date Joined Oct 2008
Total Posts : 5
   Posted 10/9/2008 12:15 PM (GMT -6)   
New to the site, i have Crohns and my mom and i both have lupus. She was diagnosed with SLE in 95. She is on everything and anything. She wants to know about stiffness.
She would like to know if anyone has any ideas on morning stiffness. She wakes up stiff from her neck to ankle. Including her wrist and ankles and fingers. She cant pull the cover over her or even adjust her pillow. Between the hours of 4 til 10am she is miserable!!!A few  hours After she takes her AM pills she is ok. She has tried taking them earlier but it doesnt really seem to help.
Please any suggestions would be helpful.
On a personal note i think this site is Wonderful. To have that Iam not alone feeling is great. Thank all of you for posting your questions and all that reply. Again a great big hug for you all!!!!

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 10/9/2008 12:35 PM (GMT -6)   
Hugs to you and your mom CononLess.

It sounds like you have had some huge complications and surgery(s) due to your Crohn's. I'm so sorry you are both struggling to such a degree. Its great that you can advocate for each other though.

Aside from the medical/prescription aspect of dealing with pain . . . many of us have had some noticeable improvement in the night/morning pain/stiffness by using any of the following:

grain bags for spot treatment (info on how to make a grain bag is near the bottom of the topic "Lupus Resources", link in my signature). You warm it in the microwave and place it(them) on your painful area(s) . . . WAY comforting.

electric, warming mattress cover (will warm from under you)

electric blanket

newer idea is the weighted blankets . . . there was a topic about two weeks ago on this one and it sounded promising to help promote sleep and control some types of pain

It seems that the inactivity through the night allows areas of the body to become stiff. If I happen to sleep for any length of time, I do find it painful to turn in bed. Some of us do some mild stretching before getting in bed or after we fist get into bed.

I hope some of the others have some good suggestions.

Welcome to the forum.


In His Grip

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Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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