Hi Paula, I'm so sorry for your loss. I lost my husband in 2000 and that was so hard. But losing a child. I don't think I could handle that one at all.
Yes yes yes, write down every question you can think of. Even if you have a hang nail it may mean somthing to the rheumy. Do you run fevers out of nowhere? that happens alot. little rashes. Also from now on if you get a rash take a picture of it if you can because by the time you get to the doctor it will probably be gone. You diffinently need to address the issue of the anemia. try taken the b12 that you stick under your tongue and let melt. Alot of lupies don't absorb it well. I think we all get tired of taking meds but the options are not that fun. Don't let the doctor blow you off. Hopefully they are good and through. Make sure they order labs and if you aren't satified with them go to another one. It can take 3 or 4 or more to get a good doctor.
Let us know how your appt; goes today I m really curious to see how the new rheumy goes. Oh see if you can find out if anyone in your family has any types of auto immune disease.
good luck and welcome to the group
Possible scleroderma. stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12
Did you ever know that your my hero?