Hello, I am new and hope to gain insight for my mom.
I have read the many forums and have received a wealth of information - thank you to all of you who share your story to help others, and my prayers are with each and every one of you!
My mom was diagnosed with Lupus aprox 4 months ago. This diagnosis was in part to an antinuclear antibody test, joint pain, fatigue, weakness, and headaches. She was at the same time diagnosed with CFS and fibromyalgia.
My mom began to have major pain issues and memory concentration issues 18-24 mo ago, and eventually had to go on long term disability. She was 1st diagnosed with bulging and leaking disk degeneration (T5, T6 & T7) and she has seen neurologists, neurosurgeons, physical therapist, physicist, epidural injection - pain management, oral - pain management doctors, been to physical therapy, she has been to a mental therapist, and a psychiatrist, has used TENS units, and most recently saw a rheumatologist.
I say all of this to show we want to learn what is causing her symptoms and how to reduce or eliminate her pain and other symptoms.
We thought we were making progress until today when the rheumatologist told us she does not have Lupus for the following reasons: she has no swelling of joints, and has mobility of movement, he had her do a balancing test and asked her to walk in a straight line to determine this (yet she broke her arm this past April - due to loss of balance and now needs to use a cane for stability and often cannot walk more than 15-20 feet without stopping to rest, because of pain) he further told her that if she would push through the pain she would be able to lower if not eliminate the pain. Yet her pain management doctor has told her that pushing to hard can actually increase the long-term pain.
Has anyone had a similar situation and if so what did you do?
I have made an appointment for us to go see my mom's primary care doctor - for guidance, but would like to know if others have been told that simply because there is no swelling and because they can walk in a straight line (3 steps) that they have been misdiagnosed.
Yesterday is history, Tomorrow is a mystery, Today is a gift, so rejoice in it!!!