acupuncture anyone?

Your current feelings about the merits of acupuncture:
Can't possibly help. - 0.0%
Don't know enough about it. - 33.3%
Can't hurt. - 0.0%
Might try it. - 0.0%
Wonderful results and worth it. - 66.7%

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Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 10/22/2008 4:23 PM (GMT -6)   
Hi! Everyone,
I came looking for a thread about lupus and acupuncture, and didn't see one? So I thought I would start one. I had my first treatment yesterday. While sceptical, (I am a nurse), I am trying to be open minded. Does anyone have any experience with it?
Thanks muchly,

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 10/22/2008 8:31 PM (GMT -6)   
Here are a couple of our previous threads where acupuncture has been discussed.

Hope this helps,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 10/22/2008 9:18 PM (GMT -6)   
HI- I have done accupuncture several times.  I feel it has helped my muscles to relax and allows for a good nights rest.  Alot of times I don't sleep well because I have pain which tenses me up and wakes me up-any time I have gone for accupuncture I have had the best sleep in a long time.  Also, I got my insurance company to pay for 10 sessions due to my meds-they made me nauseous.  about every 5 weeks or so, I will start to get an upset stomach with my meds and then I go to a treatment and the sick feeling and diahrea is gone.  I feel it has helped.  I like how you said you were keeping an open mind.  Maybe it doesn't work for everybody, but I swear by it.  I would like to mention that a good friend of mine with MS has it done about twice a month and she also feels better afterwards.
"Challenges make you discover things about yourself you never really knew."
SLE and Class II Lupus Nephritis

Veteran Member

Date Joined Jun 2008
Total Posts : 675
   Posted 10/22/2008 9:52 PM (GMT -6)   

Hi Sue,

I just completed my 5th treatment last week.  I've gone once a month, and was given chinese herbs (granulated) to take in the interims.  He instructed me on some dietary changes as well - no sugar, dairy, raw foods,(gotta cook the veggies - some fruits are ok) alcohol, cold beverages (not even water) and said I needed to stay away from high acid forming foods - being overly acidic in my body.  I was very faithful to all of the above for 2 mos.  My BP really came down and stabilized - and I stopped craving the darn sugar, and even lost some weight. (And then I went on vacation and into flare and really got off track nono  - need to get back on! )

My rheumie recommended acupuncture for help with my back pain.  That didn't happen until after the 4th visit.  I think I may have even felt a little worse for the wear after the first 3 visits for a few days and then it would level off.  After the last two tx's - I haven't really dealt with that and there's been some sustained decrease in the back pain.  I don't know what to say about the AI stuff - except that I'm still struggling with that - especially over the last year.  I guess I was prepared to be patient - my body has been dealing with health problems for a lot of years, so I didn't expect an immediate turn around.   The decrease in back pain is very helpful, regardless, and is pretty significant.  Is it all due to the acupuncture????????

I'm glad you started this thread - and hope to hear from some others - and also how, or if, you think you've been helped.  The research I did prior to starting did indicate it takes several visits before appreciable benefits generally occur, and there is some evidence that it can be helpful for Lupus and Fibromyalgia.  We'll see, huh?  For others who might be thinking about trying it - the needles/pain thing isn't worth worrying about.  Out of all the needles he's used over the 5 treatments - I've only really felt a couple sticks - and it was a very brief "owie".   I generally find the treatment itself relaxing.



diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 10/23/2008 7:02 AM (GMT -6)   
Hi Sue. I get acupuncture regularly. My BS is medical technology and I just tried to remain as open minded as possible. I started with 3 x weeks, and worked down to twice a month. It helps gives me great pain relief. It also cures my nausea. I wish I started it sooner. Good luck! Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien, flexeril, multi vit, C, flaxseed oil, acupuncture

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 10/23/2008 4:16 PM (GMT -6)   

Hi! Everyone,

Thanks much for the feedback, and to Lynnwood for the additional threads to check out. The acupuncturist did indeed say I needed afew extra visits at first for the effect to be maximized. I am lucky in that my BC/BS insurance pays for each visit. I am actually almost afraid the way I have felt since the 1st tx on Tues. is a figment of my imagination. I feel better. I really do. I have more energy, less coldness and joint pain, and have slept better than I can even remember. I will keep you all "posted'  tongue sue

p.s. I am open minded to the placebo effect,too. Cause I really feel better. Two days in a row.

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/24/2008 1:09 AM (GMT -6)   
I wouldn't mind trying it but I doubt my insurance would cover it. I can't afford it myself.
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?

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