Anyone get AVN (Ava Necronisis) spelling?

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New Member

Date Joined Oct 2008
Total Posts : 2
   Posted 10/27/2008 11:41 AM (GMT -6)   
if so, what was your experience and how did they treat you? they are assuming I got this from the high dose of prendisone I am on...

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 10/27/2008 6:55 PM (GMT -6)   
Welcome to the forum mngirl !!

I'm sure that there are a couple of members here who have had Avascular Necrosis . . . but I see more of it at the Crohn's forum, here at Healing Well. You might want to make a post there as well. I'm sorry I don't know much about it. Hopefully one of the others, more knowledgeable, will be along to help you out.

YES . . . some of the meds do cause it. Is it in your hips? I hope you'll tell us more about yourself.

Glad you found us.


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Elite Member

Date Joined Mar 2003
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   Posted 10/27/2008 8:12 PM (GMT -6)   
Hi, I'm from the UC forum. I developed avascular necrosis in my shoulder from steroid therapy. I had surgery, the surgeon removed the necrosed tissue and put in a partial prosthesis to replace the part of the long bone that was damaged. What specifically did you want to know?
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
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Date Joined Nov 2003
Total Posts : 7162
   Posted 10/27/2008 10:58 PM (GMT -6)   
I have AVN [avascular necrosis] in the tops of both of my femurs. It is currently "inactive". It was discovered in 2004 and at that time they said I would need both hips replaced within 2 years. I do not have any hip pain and there are no signs that the bone is collapsing. When it does start to collapse then I will need the hip replacement. Had the AVN been discovered in the "active" stage they moght have been able to do a core decompression to try and get the blood flowing within the bone. Since it was caight long after the damage started I now must have joint replacements. I asked about doing hip replacement now while I am younger and in better shape. The concern is that I would outlive the prostetic joint and need a replacement when I was elderly.

I am an odd case. Usually one does not go this long without pain or bone collapse.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 10/28/2008 12:13 AM (GMT -6)   
Does this condition cause sudden severe pain deep in the large joint, like hip or shoulder? I have had extremely painful bouts that are debilitating in the hip or the shoulder (never both at once). They tried to say it was tendonitis but the pain is way too excruciating. But it comes for a week or two and then leaves, though I may have residual numbness. I have endocrine problems as well, which seems to make any problems with steroids worse.
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New Member

Date Joined Oct 2008
Total Posts : 2
   Posted 10/28/2008 8:28 AM (GMT -6)   
The pain comes and goes.  Sometimes it is very extreme even when I am not putting any pressure on my knees.  They found the AVN while doing an MRI. 

Regular Member

Date Joined Oct 2003
Total Posts : 262
   Posted 5/1/2009 2:07 PM (GMT -6)   
I have it, it started in my knees and now I have it in my hips and right ankle. Very painful, and yes they attribute it to the prednisone. Mine gets worse every time I have a flare. It's gotten very hard for me to walk, but my PCP gives me pain med to help with the pain.
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diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-tumor cerebri '07, AVN ankles and hips '07, depression '07
prednisone, imuran, prograf, synthroid, diamox, OsCal +D, celexa, pepcid, welbutrin, oxycontin for pain

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