Numb fingers and thumbs

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New Member

Date Joined Oct 2008
Total Posts : 6
   Posted 10/28/2008 11:57 AM (GMT -6)   
I have fibro and Lupus , Lyrica is controlling the fibro well , its amazing !!!!!! But the Lupus ,the doctor wants me to go down to 5 mg of prednisone but as soon as i get to 5 symptoms show up .Pain and now numb fingers and thumbs is this serious ,well as serious as thumbs and fingers can be lol.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 10/28/2008 3:20 PM (GMT -6)   
Hi Linnyco,

Welcome to the forum!!

What dose of prednisone keeps your symptoms under control? What dose did you taper down from? How long have you been taking it (this time). How fast did you taper?

There are a couple members here who are really informative with the prednisone. But they'll need a bit more info. If you've been on a higher dose for a long time, you may need to taper VERY slowly. Some members need to stay on a low dose all the time. Best thing to do is to communicate very clearly to your prescribing doctor what dose is working well.

SO glad to hear that the Lyrica is helping your Fibro! YEAH! Glad you found us!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

New Member

Date Joined Oct 2008
Total Posts : 6
   Posted 10/28/2008 4:06 PM (GMT -6)   
Just started with the rheumy doc. She wants me on 5 every second day ,mostly because I have osteo arthritis too. I feel awesome on 20 lol but have tapered down slowly I'm down to 5 a day this week , last week was on 10 on day 5 the next , felt better last week .
Fibro is fine like I said , don't know what pain is the osteo arthritis its been all tangled up with fibro for years didn't know i had it .
The Lupus symptoms are the most bothersome ,mine are more muscle related , inflamed and throbbing muscles, headaches , low grade fever ,I have the mask its bad at the moment ,just a general feeling of yuck .
I was feeling well, great actually until I went down to 5 mg. this week . I have been overdoing it because I have felt so good, going mad on the neglected house.

New Member

Date Joined Oct 2008
Total Posts : 6
   Posted 10/28/2008 4:10 PM (GMT -6)   
Thanks for the welcome by the way !


Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 10/29/2008 10:04 PM (GMT -6)   
Do your fingers get cold and turn white, blue or purple?
If so your problem could be raynauds phenomenon which is commom with lupus and other AI diseases?  It could also just be an inflammatory process.  I had that initially but it went away after a while.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

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