Heartsong, I feel for you and I know what you mean. the bladder pain I'm very familiar with and it helps to see a urologist. I had an infection (I always get one on pred) and I had polyps and some chronic autoimune bladder stuff that was mild. Changing to an Interstitial cystitis type diet (well, just following their restrictions on soy and oter foods and beverages) helped, even eliminated the problem most of the time once I treated the infection. Pooping, well, what I'd give to take a normal poop. I started drinking whey protein smoothies and I add bene fiber and probiotic yogurt, along with V8tropical juice and some frozen fruit and sweetener. I make double batch in one blender jarand water it down sine it is sweet. It has improved my health tremendously by giving me the vitamins and fiber and probiotics and protein that is digestable. It also gives me energy. Some protein powder formulas have extra b12 for energy.
I try to stay off prednisone as long as Ican because I know that while it gives me relief there is also the posibility I will get sick and become sicker if I am infected with an illness. There are some promising therapies like low dose Naltrexone that might be worth talking to your doc about
while you are working, if yuo just get too worn out.
I'm looking at alternatives to steroids for many reasons, not he least of it is that I always get sick on them.
I wish you strength andgood health and a reasonable and effective disease treatment. Sometimes I wonder if the the steroids doin't help in the short term, but make things worse for me in the long term by allowing sme undiagnosed underlying illness that is ultimately responsible for many of my autoimmune problems to get worse and worse because I just keep going downhill despite the steroids. Thegood thing about
plaq is that it has a disease fighting component to it as wellas an immunosuppressant.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn