Is it or isn't it?

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New Member

Date Joined Nov 2008
Total Posts : 1
   Posted 11/4/2008 10:48 PM (GMT -6)   
Hi. Brand spanking new here. smilewinkgrin
I would say nearly 5 years ago was when I noticed a rash on my arms. I never said anything about them, in fact I was embarrassed over it and hid my arms. I only asked my sister about it and she gave me some cream for her skin problems that seemed to help. But it would come back....and I finally figured out that it was triggered by the sun. I can be out in the sun for a matter of minutes now to have a flare up. In fact even if it's not sunny out I will still break out. They are usually red raised itchy bumps that cluster into groups. Also, (knowing better but doing it anyway) floated in the pool (after applying a liberal amount of sunblock) and became so ill afterwards and breaking out BIG time. Lesson learned.
Other symptoms I have and never gave much thought on until reading and having someone suggest Lupus are:

Fatigue...I always just assumed I am being lazy. But even doing little things tucker me out.
Dry/itchy eyes...yesterday I went to the eye doctor who told me I also have developed a callus on my eye. Asked if I was sensitive to the sun, why yes I am. I NEVER go out in sunlight without my sunglasses. It's painful.
My knees always feel stiff. I have one ankle (my left one) that can keep me up almost an entire night, it's rather annoying.

Recently I complained that one of my toes kept going numb. I had no idea why. But it would come and go.
My fingernail beds are purple...but I get really cold easily.
My cheeks are red....flushed looking all the time. Actually I remember being in the Urgent Care a couple years ago and the doctor telling me I had a butterfly rash and so he tested me for strep throat.
Headaches or more pressure feeling often.
Just a general achiness all over.
I feel like a hypochondriac...maybe I believe I am because my husband calls me that anytime I think somethings wrong. Now I feel like I can't say why I feel ill...I'm tired of people not believing me and telling me to take vitamins. Which I do...just not religiously.
I talked with my friends mother and just sharing a couple things she automatically asked me about Lupus. She has a relative with it. She is urging me to get tested. Of course I'm still convinced I'm just allergic to the sun, because my sister and mother (who are NOT doctors) insist that is what it is.
I guess I'm asking for input/insight/another person with similar symptoms to tell me to get tested. Sorry for such a long post.

Veteran Member

Date Joined Jan 2007
Total Posts : 607
   Posted 11/5/2008 5:52 AM (GMT -6)   


If I were you, I would go to a Rhumty/PCP to get tested for lupus.  It seems that you have some symptoms of lupus/AI disease.  Fingers turn purple/blue, red, pale are symptoms of Raynaud  phenomena.  Lupus rash on the face is like a butterfly.  Also, joint pains are also part of the symptoms for AI diseases.  We lupus patients are very sensitive to the sun, and try to stay away from it.  I hope this helps.

DX SLE 1988; Pred 10mg, Verapmil 40 mg bd (for migraine headaches), Omerprazole 40 mg,  Calcium + Vitamin D 1200mg, Folic Acid 5 mg

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 11/5/2008 10:44 AM (GMT -6)   
Hi misslou,

Welcome to the forum,

Omega is right . . . a rheumatologist would be the doc to see. There are some links at the end of my signature that may be helpful. Click on "4 of 11 Criteria" to see the criteria for a lupus dx. Its not as simple as a blood test, but blood work can help diagnose. That link will explain it well.

Hang in there . . . it can take some time to get things figured out. But a rheumy will be best able to put the pieces together for you.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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