Oh dear . . . I'm so sad for all you are coping with. The stress of making such an important/emotional decision will not help Lupus, Lymes or Fibor either.
The hair loss is definitely a lupus symptom . . . but is also a symptom of many other issues as well. Many of us notice hair loss at the beginning of a flare.
So sorry about
your loss. That has to be a crushing experience. And now to be up against that time clock. *sigh*
Is plaquenil unsafe for the baby? If it is approved for pregnancy, it might be a good idea and actually serves to thin the blood just a bit in most cases. I'm just don't know about
its safety for pregnancy. But if you start a new topic, eliciting help re: "pregnancy and lupus" the other members who know more about
that will share some info. They just won't know we are discussing pregnancy in this topic. You could even click on the "pencil" in the upper right of your first post and change the title of this topic so you don't have to explain all over again.
I would definitely visit the Lyme forum here. Your story is very familiar. Folks are treated for Lyme and it isn't effectively treated and they think they are "cured" and still have many issues. Doctors aren't always up to date on the ins and outs of Lyme's. . . . so it can take some patient education to keep things moving in that regard.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator