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Veteran Member

Date Joined Sep 2005
Total Posts : 1744
   Posted 11/19/2008 11:08 AM (GMT -6)   
I thought I'd ask this question in this forum, as lupians tend to have a lot of other AI diseases as well.  Anyone here have hypothryoidism?  I'm being tested for it (for like the 3rd or 4th time) because I'm always desperately cold (even in August), have chronic constipation (sorry, TMI), extremely dry skin, and I've gained 10 pounds in the past year for no apparent reason.  My mother was hyperthyroid, and my sister is borderline hypothyroid.  I believe that her TSH numbers tend to fall within the normal range, although like me, she does have consistent symptoms.  I've had my TSH tested at least 4 times, usually by a GI doctor, although perhaps my rheumatologist tested me as well--I don't remember.  I've always assumed that my numbers were within the normal range because I've never heard back from any of these doctors about an abnormal TSH.  Have any of you ever been treated for hypo or hyperthyroid without an abnormal TSH?  There are more and more doctor doing that because subclinical thyroid problems are quite common.  It would be so nice if I had an abnormal TSH and could be treated for hypo because I'm so tired of being cold.  It's almost pathological how cold I get.  Of course, I also have raynaud's, but as far as I understand, raynaud's only affects your toes and fingers, sometimes your nose.  with me, my entire body becomes frozen, especially when I sit down to read or watch tv at night.  It's like my core body temp drops several degrees.
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 11/19/2008 11:29 AM (GMT -6)   
Hi Elcamino,

I wonder if your docs have checked your Thyroglobulin levels. There IS another name for that test, but I can't remember. It checks for an immune attack on your Thyroid.

Once thing you can do is gather all the test results from past TSH tests and see if there is a pattern of it rising or falling . . . you've had enough tests now to see if it is changing. That pattern might be a better help than any individual test result.

I would also consider seeing and endocrinologist. There are other blood tests that help a doctor decide how well your thyroid is working . . . I'm thinking it was T3 and T4.

Hopefully some of the others will have some better info for you. It gets so hard to sort all this out, doesn't it? Then I always wonder if the doctors really spend enough time getting it all figured out. If your thyroid IS the culprit . . . it could be a huge part of your symptoms.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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