Thanks, Fran - I appreciate your post, even though it doesn't boost my hopes at Cleveland Clinic. I looked up the doc that I got referred to - and she started there last year, and looks to be about 16 yrs old in her photo. I know that sometimes the young ones can be even more thorough and up to date - but I just haven't had a lot of luck thus far.
My daughter used to work at University Hospital in Cleveland in the rheumatology dept. (she was a medical secretary there) before she moved to GA, and she loved it and felt they had some wonderful doctors as well. This is why I haven't made my appt. yet. I keep thinking I need to be thoughtful and deliberate about this process - especially since it will be expensive as well. I want somebody well schooled and willing to investigate and look at the whole broad picture, not just their own specific tests.
I'm getting the baseline eye exam on Monday, then will start on Plaquenil, presuming I pass the exam. The earliest appt w/ CC would not be until Feb. so I have a little time to see how the Plaq works out. And a little time to figure out if I should go somewhere else. Would you mind emailing me?
diagnoses: mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds: occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair.
~~ Chinese saying as quoted by Helen Nearing