Update on my thinning hair

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Regular Member

Date Joined Nov 2008
Total Posts : 51
   Posted 11/22/2008 9:41 PM (GMT -6)   
Well not much of an update. Doctor thinks its not characteristic of lupus or anything else that he can tell. Thinks its either the hormones/meds I have been taken or I inherited the gene for female baldness. I am thinking...."give me a break, how can I bet THIS unlucky". I am really getting frustrated with constant pain and bad news!

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 11/22/2008 10:21 PM (GMT -6)   
Hi Lynnie, I don't know about your dr. but everyone I know that is on steroids has thinning hair. My hair has thined a lot. The hair on my legs doesn't even grow half the time. I'm no dr. but female baldness would surprise me. I'm sorry you are hurting alot of women here wear their hair short. I have really long hair but I put it up on my head. Maybe you can go to a salon and see what they suggest. We deserve to lok and feel as well as we can.
Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 

Regular Member

Date Joined Nov 2008
Total Posts : 51
   Posted 11/23/2008 12:53 PM (GMT -6)   
Thanks, I suppose its hurts more cause my hair was the thing I have always got complements on, my best feature if you would. Very thick and slightly wavy, long and a nice auburn color -- natural, I do not dye or do highlights. So now that has to get messed up too.

Yeah I can part it to the side to kind the receding part. Call my comb over lynnie!

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 11/25/2008 2:52 PM (GMT -6)   
Lynnie, get the FSH (follicle stimulating hormone) checked. They may be able to help that, also the derm may be able to give a topical solution. The dermatologists are more picky usually and will do more to preserve your good looks than the med docs, who are dealing with people really dying. Still, the dermatologist can do all the hormone tests, mine is going to do me when I get back from Mayo. And he will treat me better than mylocal endo,who does nothing, not even testing, and disagrees with a panel of docs at Mayo. My endo at mayo who is good says the pituitary can get messed up by autoimmune disease and the steroids we take, so he tests stuff.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 11/30/2008 4:01 AM (GMT -6)   

Lynniecat hello,

I would imagine that hair thinning can be just one more thing that you have to give up due to Lupus.  cry And such nice hair too.   but others have given you good advice it seems, in response to your hair.  and a dermotolgist seems to be a good way to fight back against the loss of so many things because of Lupus.

Hang in there.  Everyday can be that day that finds you with a change that finds your thinning hair becoming thicker again.  When I used to take prednisone, I didn't even know that prednisone even caused thinning hair.  Much more is known today than it was in 1996.  Not much to give you I guess, but a little bit hope.

Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

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