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New Member

Date Joined Nov 2008
Total Posts : 2
   Posted 11/25/2008 4:54 AM (GMT -6)   
Hi guys
I have had lupus for 17years and hope to be able to chat about a few things from time to time

Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 11/25/2008 7:46 AM (GMT -6)   
Welcome Wokker. I hope you'll find this a good place to find friends and info and even share your experience.
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 11/25/2008 8:55 AM (GMT -6)   
Welcome Wokker!

Looking forward to getting to know you! Glad you found us!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 11/25/2008 9:22 AM (GMT -6)   
Welcome! This is a great group of people.
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac, Ambien CR.
Daily Supplements: Multi-vitamin, Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 11/25/2008 10:43 AM (GMT -6)   
Hi Wokker, and welcome to our little family. It would be great if you'd tell us a little about yourself and your journey through the lupus maze. We look forward to getting to know you better.

SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 11/25/2008 12:53 PM (GMT -6)   
Hi Wokker!
Another welcome to you!  I look forward to getting to know you!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Melissa D.
Regular Member

Date Joined Aug 2008
Total Posts : 451
   Posted 11/25/2008 2:19 PM (GMT -6)   
Hi Wokker,

Welcome! I'm sure you will find this site a great resource for information and support. I have had Lupus for 11 years and am recently new to this site as well, I have found the people extremely nice, the information very helpful and the support most valuable. It is great to be able to converse with others who can relate to our situations.

Lupus - 1997  Fibro - 2001  Sjorens - 2007  Raynauds - 2008
Plaquenil, Imuran, Prednisone, Synthroid,Topomax, Effexor, Noroc, Prilosec, Xanex, Elidel, Restasis,

New Member

Date Joined Nov 2008
Total Posts : 2
   Posted 11/26/2008 2:05 AM (GMT -6)   
Thanks for the welcome.. I was dx at 19 (1991)with major kidney and lung problems, of course along with the joint aches, rash on face, hair loss and weight loss, tiredness etc you guys know dont need to explain....have had a number of flare up along the way. In 1996 i got an onfection crypto-neophoremans(?think that is right spelling) in my wrist join which apparently is most unlikely. Usually goes to blood and gives people meningitis. I consider my self lucky, my wrist was drained and not much cartlige is left i had to postpone my wedding for 9 weeks, spent 2 weeks in hospital had 6 weeks of invtravenous antibiotics. Got to the wedding after the honeymoon the other side of wrist flared up another 6 weeks of iv antis and 12 months of oral antis. 6 months of physio on wrist and it works pretty well now.
1998 became pregnant after many trips to drs professors etc, jessica was born 8 weeks early weighing 4pound 3oz, i had spent the previous 8 weeks before that sitting doing nothing as i had developed high pressure and gestational diabetes. Overall we got our beautiful little girl who is now 9yo. We treasure her and decided not to risk it by having anymore children.
Iconsider my self luck i have a great outlook on life and i think that it is my warped sense of humour that gets me through.
Currently my kidneys are normal and my lungs are ok some pericarditis (but hey you guys know with lupus nothing is normal i don't have fluid around the lungs just pain in the ribs mainly), some joint probs but hey... my best friend who is in perfect healthy recently lost her baby and didn'y know anything right up to the moment he was born only living for 45mins so yeah i consider myself and husband extremely lucky

enough about that anyway. I see on the replies you can put what meds u are on down the bottom can you tell me how to do that?

Sorry sometimes i just type and forget the grammar!!!

Regards Wokker

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 11/26/2008 2:38 AM (GMT -6)   
Top left (down a bit) click on CONTROL PANEL, then choose Edit Profile - down near the bottom of the page you'll see a block where you can edit your signature - that's where lots of us choose to list diagnosis, meds, symptoms, etc.

It is recommended that you keep it to 10 lines or less, and blank lines do count.

Hope that helps!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 11/28/2008 10:56 AM (GMT -6)   

Hey Wokker,

Glad to have you here with us.  Welcome.  I know how I felt when I first arrive.

For me, even when you list something that may have been said by one person, your words and description and illness helps me.  for whatever reasons there are, when I get in front of a doctor, I tend to not remember my words, or symptoms.  and sometimes I hear them over and over again from other people, and it helps me to remember.

Glad you are here, and looking forward to hearing more of your words, and opinions, and symptoms.


PS:  I recently had a stroke so sometimes my words do not come out correctly.  so if my sentences are missing some words, I simply did not catch the mistake while rereading the post.

Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

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