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New Member

Date Joined Dec 2008
Total Posts : 11
   Posted 12/1/2008 12:58 PM (GMT -7)   
Hello, I am a new member here. I am a 31 year old woman. I have been having joint pain in my knees, feet , hands and wrist for over a year, I went to the rhumey and had a postive ana and a levated sed rate a year ago. Recentally, i have started having pain in my chest when i lay down and my knee pain is much worse. I am always feeling a little tired. I just went back to dr and ana was postive with a higher titer 1:160 and sed rate of 35. my hair is thinning aroud the front of my head, and i sometimes have a light redness on my cheeks at night. Dr said to go back to rhumey for lupus???? I just dont know what to think, anyones advised would be much apperc. Thanks

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 12/1/2008 1:22 PM (GMT -7)   
Hi Dennylynn,
Welcome to the forum!  Im sorry you're having all these symptoms and pain.  Actually, what you have described here is exactly the symptoms I had before I got my lupus diagnosis.  I was losing a lot of hair in the front right at my hair line.  It was receding like a man's! 
You should absolutely go see your rheumy and have a full Lupus Panel of blood work done. Your symptoms, ANA titre and sed rate are good starts.  But you and your rheumy need more evidence. 
It sounds like lupus to me, just from what you described. Please ask any questions you like or need.  We'll do our best to help you through this.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 12/1/2008 1:31 PM (GMT -7)   
go back to the rheumy and if he or she does nothing find another who is a lupus specialist- make sure they treat mostly lupus patients not older people, no offense to older people but their problems are very different from lupus unless they have an autoimmune disease. Having a handful of lupus patients does not an expert make.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, now cellcept

New Member

Date Joined Dec 2008
Total Posts : 11
   Posted 12/2/2008 1:22 PM (GMT -7)   
Thanks everyone . i go to rhumey on dec 8. I was wondering does anyone have chest pain / under arm pain when you lay down? i have been having really bad pain at night and it wakes me up from sleep. Can you have lupus without any swelling just alot of pain??

Melissa D.
Regular Member

Date Joined Aug 2008
Total Posts : 426
   Posted 12/2/2008 1:51 PM (GMT -7)   
Hi Dennylynn,

Welcome to the board. Glad to hear you have an appointment with your Rhuemy soon, he/she will be able to run a full lupus panel and give you some more answers. To answer your question about pain and swelling, the answer is yes, you can have extreme pain and little to no swelling involved. Lupus is a very strange disease, it is not unusual for individuals to have different symptoms or results. I have severe joint pain, but very seldom get red or swollen joints.

As far as the chest pain goes, that could be a number of things, so it's good that you are going to see your doctor next week. Chest pain could be caused by inflammation of the lining in the rib cage and/or lungs. It could also be fluid in the lining of the lungs and/or heart. Does it hurt when you breath? Or more when you take a deep breath? I have been battling inflammation in the lining of the lungs and rib cage, it is very painful, and does hurt more when I lay flat. Some nights I sleep in the recliner because it is more comfortable.

There are some great links on this board that will help you find some of the answers you are looking for. They are at the top of the main lupus page. Also, the Lupus Foundation of American has some great information for newly diagnosed individuals. Here's the link if you need it:

Take care and good luck at your appointment.
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

New Member

Date Joined Dec 2008
Total Posts : 11
   Posted 12/2/2008 6:30 PM (GMT -7)   
Thanks so much melissa ! yes i do have more pain when i lay down and when i breathe deep. My mom has RA and my aunt has MS, so me having something auto immune is not out of the question. thanks so much again!!
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