I was running

((((((((( Judy )))))))))) YES! I have dreams like that too! Sometimes, I'm effortlessly jogging along ... and sometimes I'm flying about 5 feet off the ground. And yes . . . I can be perfectly content with "the way things are" and then some little thing will really "get me". When I see backpacking equipment or walk through a sporting goods store, I end up in trouble. I am a true "suzie homemake" but I am also a real tomboy and I was training to hopefully walk the Appalachian Trail (a few years ago). But ended up living in a recliner for a couple years. I'm still hopeful . . . but its just a bit of a dream now and I'm coming to terms with the thought that I really can't spend 3 months on a trail to walk 2000+ miles. The good news, for me, is that I am able to walk 1-3 miles at a time and I'm enjoying more energy and strength than I'd had for a long time. I hope the same happens for you. I had actually given up on ever having the ability to take care of my home again. So, for now, I WAY appreciate each time I am able to wash the floor and walk up and down the steps with laundry . . . it is an extreme privilege that I will never again take for granted. (((((((((( Judy )))))))))))) Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08) Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator

(((((((( Judy ))))))))) Oh Judy . . . no . . . I'm SO glad that you were able to share about this topic. It's really hard to start a topic like this and I think we all find ways to cope. Sharing our coping strategies and our disappointments and aspirations is good for most everyone. Thanks for braving this topic. Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08) Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator

Oh, to run again! I ran the Chicago Marathon 3 years before my friend "Lupus" arrived...I was so very happy at the end when I felt great and was still able to 'bounce'! Some of my running friends were all wobbly and sore for a week and I was feeling *so* good! I'm really glad I enjoyed it so fully Now they still run and I stay home and sleep! Life changes, and I've learned a lot about how to deal with major life changes and still be okay and move along with things. Maybe move slowly, but still live! Keep on dreaming! Lynnwood, Co-Moderator: Lupus Forum SLE (’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1 Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex Links: DIAGNOSING LUPUS (4 of 11) , LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions

It's kind of ironic. I went to my heart doc today and he told me that my heart muscle is still strong, there is some damage to my heart but nothing that would prevent me from having a transplant. He told me he wants me to get a stationary bike and start trying to recondition my wasted muscles! I really feel encouraged. Now to pace myself and not try to 'run' before I can walk!!!!

I know this has been reiterated alot, but how sweet is it to have people who truly understand your craziness?!!! Love ya, Judy

Judy . . . let us know how the bike thing goes. You need to have it near a tv. I should start using my treadmill again . . . now that it is flipping cold outside most days. Start slow and for a very short time . . . I've found that I can do more and make better progress by doing very short distance two or three times a day. Keep us posted, ok? Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08) Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator