Thanks Judy and Nan! My blood is so thck now I can't hardly test my sugar. It may be just the old lack of oxygen, dehydration, migraine, electrolyte thing that happens.
Since I had the old head injury with blood poisoning, the encapsulated infections and abscesses deep in my neck that hadto be cleaned out and the recurring problems with neck infections. it might not even be lupus.
I was ready to go nuts with the headache, but the pred took it away. Finding a good doc here is hard. I asked for aspinal tap before because my back is so bad and happened so suddenly, and is deformed, but they won't do it and treat me like I'm a hypochondriac even though I had meningitis labeled west nile before.
I will ask again. It seems such a small thing todo since I've had a myelogram and two neck surgeries and was told I'm heading for a wheel chair and some level of paralysis because of spinal compression in my neck and several other places. But they said it was a bigger deal than injecting the dye in my spinal cord because they are removing fluid, though I got the horrible headaches when I had the myelogram too so I lost some CSFthen too.
Maybe I can push them some. I don't know. Hopefully it will go back in remission once I'm off the isoniazid. Thanks so so much. I'm so sorry you both were so sick and I'm glad they knew what to do. My ANA is always high, but they say I don't have lupus, just sjogrens really bad. I don't know thedifference. Seems like both are pretty bad. Iwas ready to blow my head off and yelling at everyone. my neckand head both hurt. light was killing me really bad. Went away within an hour of taknig pred, started feeling better right away. It felt like my brain was frying.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids