Finally had an appointment with a Rheumatologist 2 weeks ago, got test results today. Before today my Anti Double Stranded DNA went from 5 to 9 to 18....from indeterminent to positive. They did an ANA back in the spring, it was negative.
Now test results are as follows:
DNA (DS) Antibody ..... 5 (so back to indeterminate--but we know these fluctuate
Anti SS-b/LA (Sjogren's AB) ....-1.0 Neg AI
Anti SS-A/RO (Sjogren's AB) ....-1.0 Neg AI
Antinuclear ABS 1:40 Speckled
Histone AB -1.0 (Negative)
Thyroid Peroxidase AB: -10 (Negative for Hasimoto's)
So...the DNA and the ANA both came back positive, a low positive.....but positive.
Doc says the ANA was really low.....and the Anti DNA really low....and that there is no chance of me having any type of connective tissue disorder....including Lupus:
Here are the symptoms:
Rash, itchy, scaly
joint aches -arthritis in thumbs, fingers, hips, (both sides)
numbness and tingling in foot
sore bottoms of feet in morning upon waking
chest pain between ribs in back upon deep breathe and sneezing
shortness of breath
I'm sure I'm forgetting something here.....but, you get the basic ideas.
I do have Hypothyroidism, Raynauds, IBS.
This Rheumatologists insisted when I went for my first visit two weeks ago that I had Hashimoto's, and didn't have Raynauds....
He told me differently this time.....
Am very frustrated, have been trying to get to the bottom of this for close to a year now, and am really tired of the doctors playing guessing games. Asked the Rheumy today what his opinion of what is going on with me and he flat out said, I Don't Know. Told me my symptoms bored doctors like him..... I pretty much tuned him out after he told me that my positive (although low positive) results didn't really mean anything ......
Told me to come back if I felt differently in the future!!!! You can bet I won't be going back to him EVER.....
Thanks for listening...any advice, opinions, etc would be very much welcomed!