Perhaps I can lend some encouraging words. I lost my mother in 2001, she died of lung disease. For many, many years she denied that she had the disease and did not need medicine or oxygen, she would say the doctor was lying, she was in denial. Finally the time came when she could no longer deny the fact and she had to go on oxygen and meds, it was the best things she ever did, it gave her a life again.
If Mom had not been in denial for so long and started the oxygen and meds earlier perhaps her disease wouldn't have progressed so quickly and we might have had a few more years. I can tell you that I would give anything to have my mother back, to have just one more day with her, to tell her all the things I never got to say to her. I loved my mother, I would do anything I needed to do for her, I'm sure your family feels the same about
you. The word burden never came to my mind, I just did whatever Mom needed me to do, just as she had done for me throughout the years.
I'm sure you are a very strong person, you have to be to live with this disease! If you do it for no other reason Barb, put that oxygen on everyday for your daughter! Each time you do it will extend the time you have with her and that's what truly matters isn't it? Don't worry about
what others think, just think of those that matter most to you.
Lupus - 1997 Fibro - 2001 Sjorens - 2007 Raynauds - 2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis