Welcome! Like Hippimom said, this is a place where you can just be you. No one judges, we all support each other and do our best to lift each other up. I also have had many times where I've been in sobbing tears typing posts here. No one understands what we go through, except those who have the disease, and God! LOL. I'm sorry your circle of support is lacking. It must be a very lonely feeling. Well, you have us now, and we're here through the good and bad!
I was diagnosed 8 years ago too. I've had many ups and downs going through the grieving process. I still haven't fully accepted my limitations and I end up overdoing things and trying to live like I did before lupus. I'm learning much faster now, that my limitations are real and I have to accept them. I'm struggling with Fibromyalgia more than my lupus right now. So that has added to my reality bite. I'm even more limited with my Fibro. It's hard to cope and find peace sometimes. But I lean on God and my faith in Christ to get me through. Thank goodness I have that!
You can ask any questions you like. We're here to support and learn from each other.
I have some strange allergies myself. But not what you are describing. I think lupus being an immune system disease will make allergies very odd!! You're a Canadian! Me too. I"m in southern Alberta! BRRRRRRRRRRRRRRRRRRR. -40 with the windchill today.
I hope you have a good Sunday and I look forward to getting to know you more,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus