Could I have LUPUS?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 12/17/2008 6:44 PM (GMT -6)   
Please help me. Im a 30yo male with a significant history of Crohns disease. Is this Arthritis or something more serious?
Crohns -  diagnosed 2005. Small bowel resection in 2008. Been on and off prednisone since 2005. Most recent use of PRED was October 2008. Approx 2 months ago. Ive taken Humira for 2 months with last dose in October as well. I was taken off Humira due to rash on face, and numbness on face.
The only drugs Ive been taking since October is Low Dose Naltrexone, Zoloft, Klonopin. Thats it.
My Crohns is great, but now..........
1. Im being tortured!! I am having the WORST pain in my life in my joints. I cant take Pain Killers due to LDN,  I cant take NASIDS due to Crohns.
2. This joint pain has effected every joint in my body but only effects 1-2 joints at a time... 
3. The pain is ALWAYS worse at the end of the day and through out the night. It is Extremely painful during the night and I cannot sleep at all.
4. By the morning the pain is almost gone, then by afternoon it comes back IN A DIFFERENT SET OF JOINTS. This is really freaking me out.
5. There does not appear to be redness or swelling but it feels like my knee will explode with pressure.
6. Ive had this in my Jaw, hips, knees, ankles, wrists, toes, and fingers.
This is ruining my life. I just lay in pain all day without being able to interact with my family

29 YO Male
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 12/17/2008 8:58 PM (GMT -6)   
That really doesn't sound much like lupus if that's the only thing that's happening. I think the right dr for you to see would be a rheumatologist -- that's the dr who not only does joint pain but is also the lupus guy!

Check out the links in my signature for more lupus info, esp. the 4 of 11 symptom criteria to see if you think lupus is what you should look into. I've been told that one AI diesease usually goes with another, so you may be seeing something like that happening from your crohns - or haven't extreme cases of crohns been known to go into the joints?

Good luck, and come on back if you have more specific questions for us

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(8mg), Piroxicam, Xanax(as needed), Trazodone, Boniva(monthly), Wellbutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 12/18/2008 10:43 AM (GMT -6)   
I'm so sorry to hear about all of the pain you are in - constant pain can really wear a person down, I agree with Lynnwood about seing a rheumatologist to address the pain and possible causes. I don't know much about LDN. We have a member here who is doing well on it and she said that you can't take most pain meds, but she said there was one you could take. I think it was demerol or darvocet (it starts with a d), but I'm not sure. Ask your LDN doc or maybe visit a LDN forum to ask about it to see what might be availiable for pain relief.

I really hope you get some relief soon. Please let us know if you have any other questions. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



Please allow HealingWell to continue helping others by donating:


Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined Oct 2007
Total Posts : 185
   Posted 12/22/2008 11:21 PM (GMT -6)   
You pain is just like mine...
I am always the worst at night.... My only real help in the pain is hot water and rest....
I am taking meds now and they do help but hot water and rest is the best......
I'm sorry this is happening to you...
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 22, 2018 2:13 AM (GMT -6)
There are a total of 2,984,131 posts in 327,186 threads.
View Active Threads

Who's Online
This forum has 161973 registered members. Please welcome our newest member, Ucer1.
244 Guest(s), 5 Registered Member(s) are currently online.  Details
Kent M., whatdoigotDOC!, Hoagie, F8, huneri