I too have had those very scary senerios! I have experienced total loss (except my eyes) and from the chest down. I have seen my Rheumy, primary and neuro...no dx or explanation.
I am courious as to how long it takes you to regain movement and do you experience extreme muscle fatigue after? Do you experience loss of bladder control? I have.
My father used to live with me and would find me awake, unable to move. It became so common that he would set me up and talk to me even though I was unable to reply. I now live alone with my child and fortunatly she has not realized what happens. I either pretend Im asleep or stay in the bed.
Good luck and I am interested in what your doctor will say.
31 year old mom of 1:SLE,UCTD,FM, Arthritis, Reynolds, Migraines, Alopecia, Periphreal Neuropothy, Int. Bells Palsey, Costrocondritis(?), Degenerative Disks, Bulging Disk/Cervical, a bunch of other stuff I don't remember right now and even more labwork I dont understand! Patient at Johns Hopkins in Baltimore, MD. Plaquinil, Trazodone, Lidoderm, Neurontin, Flexeril