Hi Lespaul, Wow sounds like you two have been through alot together. You said the dr. said it would be a rare side effect? I was wondering what would be a rare side effect? Depression? Because depression is a huge problem with lupus I think most of us are taking some type of anti depresssant or seeing someone. Not only is it depressing to know in your mind that you have a lot to offer but your body has you trapped it also causes very real physical reasons that attack your body that causes depression. Your adrenal glad is one thing. if it's out of wack from the lupus it can cause depression and extreme tiredness. Some people do lose weight. But usually there is a weight gain problem because of steroids and less activity.
I don't think I would take what she said right now to seriously. It sounds like she is suffering from depression and you are the one she loves the most and feels safe pushing you away. Unfortunately you can't force her to get help. You can be supportive and help her if she's having a rough day but if she needs a dr. she needs to be agressive with her own care.
Maybe you should try some counseling on your own for a little while. You can't ignore your own emmotions fears concerns. Care givers have a tendency to put their loved ones first and than they wind up being sick. Try to take it one day at a time and don't worry until you know there is something to worry about. Lupus can cause problems attacking the brain as well. Maybe the dr can get her on something to get her feeling better. Get another CT scan see what's going on there.
You're both welcome to come here any time with questions and fears or whatever. There are a lot of great people here that are very supportive. By the way that was me you read about with the lung problems and said God bless. I just wanted to thank you for that.
You and your wife are in my prayers let us know how it goes with the dr.
Possible scleroderma. stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix,inderal,pot.chlor.,B12
By his Stripes we were healed.