Ginny, thank you so much.
I didn't realize that the rash was an AI issue. Thanks for the info.
The only thing is it seems different then what's described for lupus. My rash is red, blotchy, itchy (all the time except for the days it completely clears up) and scaly but with tiny little whiteheads all over. It's on most of my upper back. I find it so weird that I can have it so bad one day and get up the next and it's completely clear. I've had it for a few years now. I never bothered to get it checked out, don't ask me why?
My wife seems to think it's just inactivity that's making my joints ache. I don't believe so cause it all came on at once. Sure I've had sore knees but to wake up from the pain and to have sore wrists and finger joints. To have to take ibuprofen and tylenol every six hours is not normal for a 49 year old. I do hope she doesn't think I'm being a hypochondriac? I do worry that that's exactly what I'm being??
What I haven't told you is I've been sick for 6 years but this has nothing to do with this issue. I was smoking pot every now and then and then I became chronic. I woke up one day with unbelievable pain in my upper abdomen. I had to go to the emerg. I was put on IV, was given tests and lots of morphine to get rid of the pain. Once I got the morphine, the pain went away and I could go home. That started happening every month along with constipation and vomiting. The vomiting became so bad that it ended up just being acid.
I went to doctor after doctor and had test after test. No one thought it could be the pot and I had been totally honest with my doctors. This went on for 6 years until last december when a new doctor (due to moving to a different city) suggested that I try quitting it because you just never know. Well, she was bang on. It had been getting so bad that it started making me feel awful every day. I'd get this pain that would come on at any time. Every single month in the emerg.
I'm happy to say that that part of my life is over with. I quit and will never go back. I missed out on so many family functions. My world became very small. I started to not even wanna go out. I used to get in the shower and sit in the tub and put the water on so hot that I would burn my back and get blisters. That pain would over ride the pain I was getting from whatever was causing the problem. Sounds silly but it kinda worked. I also would be up at three am until 8am just trying to feel better. Trying to go to the bathroom, sitting in the shower. Every day for 6 years. I can't believe I didn't kill myself cause it was just awful. The pain would be so bad in my abdomen that I would put my finger down my throat just to stop the pain. The retching actually stopped the pain for a couple minutes. When an attack came on I'd be in bed awake for a few days vomiting until I went to the hospital and got pain medication. Sometimes my potassium would be so low that I'd be given some in the hospital. I'd get the attack and try to get over it. I'd be sick for a day or three just vomiting up acid until I got fed up and went to the hospital. The attack would not go away until I went to the hospital and got pain meds. Once I got the morphine it would stop.
We went to Paris one year and i spent the first 5 days awake in my room with the attack. Thank god we had medical insurance cause I ended up having to go to the emerg and get morphine to stop the attack.
I do remember contemplating suicide because life was just that awful. I started having less and less good days.
I must say it was hard to quit and it took several attempts but I did it.
My doctor is going to write it up in the Journal of Medicine because nobody knows that pot can cause this issue. My wife has since had a couple people come to emerg repeatedly with the same problem and they also smoke pot.
Now I'm beginning to wonder if I have some other issue that the pot made worse and that's why I had all that problem with pot. It's not a common occurance and it certainly isn't documented that pot can cause that.
I don't know...my bowel movements changed. I had to push cause I had no feeling down there to know if I had to go or not. After a couple months of quitting all the problems went away with the one exception of constipation.
I do know that I'm tired, tired of it all. Six years of my life gone over pot. If I had known I would have quit right away. Instead I felt sorry for myself for being so ill and used the pot as my reward because it was the only fun thing in my life. Talk about
doing the wrong thing???
Now, I'm just starting to wonder if there's an underlying problem there that connects all of this???
Again, thank you so much for the support, it means the world to me. I'm feeling kind of alone and worried. Don't get me wrong, my wife is the best and I adore her. I just don't want to come across as a big baby who's needlessly worrying. She had to go thru all of that with me so I'm kinda worried about
putting even more on her already burdened shoulders.
I mean she's a doctor and her life is stressful enough with that alone.
Again, thank you, thank you, thank you.
49 years old, female
Post Edited (tele) : 1/4/2009 8:15:21 PM (GMT-7)