Hi Carol ,
That's what I didn't understand, see I've been dealing with inflammation in my lungs and rib cage for several months now, I had no idea that could cause scarring in my lungs? I guess that's what has happened anyway. I don't know if I told you all or not, my memory these days, it's another issue, hehehe. Anyway, I was in the hospital in August for GI issues, while there I told my doctor I was having a hardtime with shortness of breath as well, he had an x-ray done and it showed some spots on my right lung, followed up with a CT w/o contrast and said everything was fine. So, I thought, well it was probably a shadow or something, who knows, didn't think too much of it, but the shortness of breath has continued. Well, my gp that used to see has returned to our clinic, so I switched back to her, I went to see her about a month ago and was really short of breath, she took it seriously and began sending me for x-rays, pulmonary testing, echos, etc. Since it's the holidays, I only know that I have scarring in my right lung, I haven't gotten anything back on the other tests yet, but she is at least working on this, she is also a very good friend and knows this is not like me to be like this.
So, for now, I haven't officially seen a pulmonary doctor, but I went to their office for testing. I'm sure my doc will set me up with one as soon as the results come back. She is very proactive. Had I stayed with the other guy heck, who knows, because now I have scarring which was probably there in August he just failed to catch it. I'm only 41 years old, I think he looked at me like I was making all of this up or something and didn't want to take it seriously, that's the only thing I can figure. He obviously is not educated in lupus, that is why I go to San Antonio (3hrs away) to a rheumatologist who is educated in the disease, but I can't do that for a gp, I don't have the energy for one thing.
Thanks for listen Carol, lord knows you don't need to bare my burden too, but it does feel good being able to talk to someone who can relate to what I'm going through. I appreciate this board more than anyone can ever know! You folks on here are just awesome! You lift me up when I'm at my lowest and bring a smile to my face just when I need it. Thank you.
Hugs and Prayers to you!
Lupus - 1997 Fibro - 2001 Sjorens - 2007 Raynauds - 2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis