Posted 1/6/2009 8:06 PM (GMT -6)
Hippi,

Sjogren's can cause joint pain and fatigue as well as a host of other problems. This could certainly explain why you've been feeling so bad. I wonder if your lupus ad sjogren's are flaring at the same time. What a double whammy. I hope you can get to your doctor and get some relief. You've suffered too long.

Love,

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 1/7/2009 12:06 PM (GMT -6)

PattyLatty and others.  I went look forward what I needed to know without to create another topic.  I was wondering if Sjogren's has the same effect as Lupus, and how can we know which one it is.  Evidently the joint pain and fatigue happens with Sjogren's just like Lupus.  so does plaquenil also work for Sjrogren?  I am not so sick that I can hardly do anything at all,  but I do not know if Plaquenil is working as good as it was in the beginning.  Hopefully I can see the Rheumy on the 23rd, so that I can ask him these questions.  If I can remember it.  my response to doctors is not good, and I never remember all the things that i wish to ask them about.

Thank you for sharing this.

Hester


Lupus diagnosed 1996, Fibromyalgia diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008, Stroke 11-4-08
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

Posted 1/7/2009 12:51 PM (GMT -6)
Hi Hester,
 
I understand what you mean about not being able to remember all the questions you wanted to ask the doctor when you go to your appointment. I used to get so mad at myself when I would leave the office and suddenly remember "crud, I forgot to ask_________." So, I bought a journal at the craft store, they have them in the $1 bins, I think they have them at the $1 store too, anyway, now I keep it next to my laptop, then when I read things on here or think of a question I want to ask my doc I write it down. Before I go to the doctors appt I review all my questions and organize which one's I really need to discuss with the doctor and take my journal along with me. Then when I'm at my appt. I make notes of important details the doctor tells me and things of this nature. This way everything is in one location and I can always find it!
 
You might give it a try, it's certainly saved me a lot of grief! turn
Cheers!
Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

Posted 1/14/2009 12:19 PM (GMT -6)

Hey Melissa,

I have been jotting things down, and trying to get them into some kind of order to take them with me when I see the doctor on the 23rd.  Hopefully I will have it completed and in ordered.  and I hope I do not forget to  take them with me when I see the doctor.

Thanks much for your support

Hester


Lupus diagnosed 1996, Fibromyalgia diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008, Stroke 11-4-08
 
******
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

Posted 1/16/2009 4:34 PM (GMT -6)
Hester, I keep a symptoms list on my computer so I just have to do updates as I feel changes. I was unsure about plaquenil working until the Dum-Dum(aka my Rheumy) pulled me off it and imuran and sent me into a huge flare. I will not go off it again. It was horrible. The fatigue, the joint pain and an attack of hives that was worse then I'd ever had. Good luck and God Bless.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 

Posted 1/16/2009 9:44 PM (GMT -6)
Hippi, I am like you I don't much about Sjogrens either. I live in the South (GA) and I have noticed over the last couple of days my lips are extremely dry and so are my hands. I haven't noticed my mouth being dry but I usually have candy or something to drink with me. Like you I am in a flare, I had my labs done a couple of weeks ago and my WBC is lower than usual, I've had a lot of fatigue, muscle and joint pain.

I hope you find some relief soon! Take care
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

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