Good news...I think!

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Regular Member

Date Joined Apr 2007
Total Posts : 22
   Posted 1/6/2009 2:26 PM (GMT -6)   
Happy New Year Everyone!!! I have started the New Year quite well. I got spend time with friends, talk to family, eat and best of all sleep...a lot. I was a little achy here and there but for the most part no major complaints.

So...I went to my primary care doc to review my anemia results (still very low). She told me that my breathing and fatigue issues are most likely rooted in that. Yaaay!!! I just need to take more iron than I have been and that's okay. I will do it.

I didn't have my follow-up rheum appointment yet but she eyeballed the blood tests that he ran and looked at his notes. I did test positive for the lupus anticoagulant factor (?) but the positive was very slight. I thought that was good news.

She told me that based on his notes it appears as though he may be leaning towards a diagnosis of fibromyalgia (sp?). I don't know much about it so I am going to check it out.

Getting answers is awesome. Thanks again to all the members. You all offer such wonderful support. I feel blessed to be a part of this community.


Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 1/6/2009 7:14 PM (GMT -6)   
Nicole, I hope you continue to get some answers. Not knowing is a really hard thing to go through. I'm glad you have found Healing Well to be helpful - I don't know what I'd do sometimes without the support of all the great people here.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 1/7/2009 11:50 AM (GMT -6)   
Hi Nicole!
That is very good news!  I hope that the anemia isn't chronic. If it is, I would highly recommend getting a second opinion on the lupus diagnosis. Anemia is such a huge symptom for Lupus, and so is the anticoagulant factor (even if it's a slight positive). I just don't want you to be misdiagnosed. 
Fibro and Lupus mimick each other tremendously. But Fibro won't show any positive blood work for Lupus, unless you have Lupus as well.  It's very, very common for both to be diagnosed together. Just make sure your rheumy is not second guessing anything. 
Come and visit us in the Fibromyalgia forum. We have lots of info and the forum it SUPER active.  Lots of communication going on. 
Keep that positive attitude Nicole!  Answers are coming!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Moderator for the Lupus and Fibromyalgia forums

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