Lupus and taking vitamin D3

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Regular Member

Date Joined Jan 2009
Total Posts : 20
   Posted 1/8/2009 9:28 AM (GMT -6)   
I have been reading about the benefits of taking Vit. D3.  Has anyone tried it?

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 1/8/2009 10:00 AM (GMT -6)   
Yes, but I can't tell any difference.
I don't know that anyone would unless they have a deficiency to start.  My Vit D test was normal so I am taking it as a supplement because there is a debate on how much Vit D you should get.

Regular Member

Date Joined Mar 2008
Total Posts : 60
   Posted 1/8/2009 7:45 PM (GMT -6)   
What are the benefits of taking vit. D that you've read about? I think most lupus patients who take it do so either because of a deficiency they have due to the disease process, OR to prevent a deficiency since we have to stay out of the sun.

I have been on vitamin D because of an extreme deficiency (I took high doses by prescription at first and then switched to an over-the-counter maintenance dose). I don't think it has helped with any of my symptoms, but my vit. D level was back up to normal last time it was checked, thankfully.
~ Bee

God is the strength of my heart! - Psalm 73:26

Post Edited (doodlebee) : 1/8/2009 5:48:12 PM (GMT-7)

Audrey Ann
Veteran Member

Date Joined Jul 2005
Total Posts : 815
   Posted 1/8/2009 11:12 PM (GMT -6)   
I, too, have taken a prescription dose of Vit D and am now on an over the counter dose to address a deficiency found in recent bloodwork. My family doctor decided to test me for this since new research out on Vit D is pointing to many possible health problems like heart disease and, possibly, early death. My doc said he suspected a deficiency since I am not supposed to be in the sun. This does make perfect sense to me.

Honestly, I cannot tell the difference. My bloodwork now looks normal so the treatment seems to have worked.

Good luck!
Audrey Ann
Lupus, RA, and (Maybe) Fibromyalgia and LOTS of Medications!


Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 1/9/2009 11:24 AM (GMT -6)   
My vit d levels were low so my rheumy put me on an Rx for 50,000 IU and I don't feel any different than before but from what I've read it's good for the bones and heart health!
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Regular Member

Date Joined Feb 2006
Total Posts : 186
   Posted 1/16/2009 10:14 AM (GMT -6)   
My levels were low, and I have been taking a supplement for about 6 months now.  I feel awesome!!  My fatigue isn't as bad, and my bones and muscles don't ache near as much as they used to.  I am allergic to all light and milk, so I don't consume Vit D really anywhere.  It has to be taken with Calcium to help with absorbtion. I feel about 90% better than I did.  I take it in liquid form and the calcium in pill form. 
I do notice if I don't take it, I feel pretty sluggish.  I am so grateful that I "listened" to my body and pursued the possibility of low levels.  My deceased doctor was always trying to get me to "get on" the vitamins, but I was lazy and stubborn.  I wish I had listened to him.
If I had to guess, if you are not allergic to the sun or milk, then your levels might not be low.  There is a huge mystery about the role of Vit D in people with Lupus, that may be why some people cannot tolerate supplementation.
good luck!
"There is a little naughty monkey in all of us!"
Mononucleosis / Chronic Fatigue Syndrome 1991, Depression,Endometriosis 1994,Costochondritis,Stage Two Dysplasia 1994,Asthma 1995,Tonsilitus 1999,Lupus Jan 2004,Migraines, Interstitial Cystitis  2005, GI Bleed/problems 2007.
Rx:Hydroxycloroquine (Plaquenil) 200mg 2x/day,Hydroxyzine HCL (Antihistamine) 25mg 1-2 pills at night,Albuterol Inhaler  taken as needed, Acidophilus tablets 1billion CFU, Cabergoline 1x/wk, Valtrex 1gm/daily, Vit D 2,000 IU daily, Calcium/magnesium supplement

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