Went to doctor yesterday

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Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 1/8/2009 3:33 PM (GMT -6)   
Went in yesterday to see the autoimmune doctor. If I dont respond to Imuran by next appointment (in Feb), I will have to do radiation therapy. What is that like? I'm also leaving for a trip to the coast for a week later today, while I have some compuzeen umm sound it out to get what I'm saying. Tried it last night for the naseau, and worked like a charm.
take care all. I'll prob check off and on while hiding at the coast for a break.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 1/9/2009 11:45 AM (GMT -6)   
Hi Smurfy,
I don't know what radiation therapy is like. Let's hope the Imuran works really well for you and you won't have to do the radiation.  I'm on Imuran and it's been life saving for me.  I respond very well to it.
Enjoy your time on the coast! 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 1/10/2009 7:06 PM (GMT -6)   
Hi Smurf, I can't help much with your question either. I just wanted to let you know that you will be in my thoughts and I hope the docs find something that works for you. The coast sounds very nice - enjoy it as much as you can.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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