Hey Margie, Thank you so much for taking the time to reply. I'm so sorry you and hubby are going thru so much. Bless your heart! You are right the frustration of not remembering is the worst. I feel like people think I must be drunk or high or somthing. and I really hate it when they say the "Carol we had this conversation already!" That's when I feel like smacking someone in the head lol.
In regards to my transplant. No I am not on the list. Next monday is a class for people who are trying to get listed. The transplant coordinator said they do this because so many people have no idea what is all involved in a transplant so before ever getting started they have this what I assume is more like a Q@A. I know there are tests that they run that I will flunk but I don't know if it will make me uneligible for transplant or not. They need to biopsy my lungs to seen if it's the autoimmune problem that has destroyed my lungs or not. If so I can't get a transplant. They won't give me lungs if my body will just attack them again. But my lungs are so bad just the biopsy could kill me. Yes it's some pretty heavy stuff. I am trying to not think about it too much.
Anyway yes it's at the hospital in oklahoma city. at integress? Pond creek is about 30 mins east of Enid. Population 3. lol just kidding there are about 1000 people here. You know just one of those one gas station one small grocery store, no stop light towns. But it is surprisingly clean and pretty oriented for kids. usually a place like this won't spend the money on the youth but they have lots of things here for kids. Mine are grown but it's still nice to see.
Anyway now I'm just yacking so I'll let you go. Stop by any time. I'd love to hear how your crohns is getting along and your hubbys problems. feel free to give me a shout any time if I can ever be of any help/
God bless I hope the angels keep up with you all.
Possible scleroderma. stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
Bear ye one another's burdens, and so fulfil the law of Christ.
Galatians 6:2 KJV