I have done more reading here than anything. I am a long time member of HW, I usually post on the CP & CD forums. My story goes like this. One year ago my PCP sent me to a rheumy because she was thinking Connective Tissue Disease or Lupus. An earlier ANA was postive. So, she ordered anothe ANA and a Smith, both positive. Postive ANA does not mean Lupus this we know.
So, off to this rheumy she sent me. He was a jerk to say the least. I am on many medications due to various illnesses, ok. But, when you have these problems you must be on medication. In addition I suffer with chronic pain and in 05 I had a pain pump inplanted and I have done very well with it.
We went thru the question & answer thing. No, I don't have a butterfly rash and never have. So, we talk again about my pain pump, this guy was more interested in how my pump worked over why I was sent to him, no kidding. So, then he hands me some papers to read abut Lupus and a sheet with info on it about Plaquenil (?) . Then he says "well you are already on so many medications, I just don't want to add to the mix". I very calmly looked at him and said, I am not here for medication, I am here for a consult only!!! So, in all he decided that I had Lupus and it was in remission. Needless to say I never went back. I go back repeat this to my PCP how the appt went. He had sent her a report saying I did not have Lupus. I asked her, then why did he give me this info on Lupus and the medication he uses, and then say it was in remission?? Of course, she had no answers to this. I did have the papers with me that he gave me and she was really disturbed over this. She has bugged me about going to another dr to be checked, so I agreed to go to a new one.
I saw the new guy 1st week of Dec. and he spent 2 hours talking to me and then he did his exam. He did not pass out when I handed him my list of meds, which his nurse had already put a copy in my chart. He asked what happened with the 1st rheumy and I told him exactly what happened. After 2 hours, he tells me I have Lupus and its not in remission and never was. Now, the Lupus may be drug induced due to medication I take for crohns, which was Remicade and Imuran. I have been off Remicade since Nov but started Humira in Dec. He wants me to see an eye spec before filling the script for Plaquenil. The dr says either way, drug induced or not the medication will help, so either way I will be covered. In addition, he did a ton of blood work, my PCP was shocked when she saw all the blood tests he ordered,lol. In addition, he sent me for plain film xrays of the sacroliliac joints and was quite surprised that none of my drs had done this previously. I have been fighting with my ins to get them to pay for an opthamologist, I finally got approved for that. I see the dr again tomorrow and I will be curious to see how the appt goes. I must say this new guy is much more impressive, much more thorough than the 1st one.
I have a question for you folks here. How long does it normally take for this medication to kick in. Is is a gradual improvement or immediate? I have terrible joint pain, even with the pump I do have pain. I have dealt with pain for so many years that its like becoming immune to it, but when it decides to rear its ugly head it gets real ugly for me.lol
Since I am a newcomer to this, I would appreciate any thoughts or comments you can throw my way. Thank you in advance for your help. Susie