Hi everyone, thank you all for your response. Donna, thank you so much for your prayers keep them coming please. I'm trying to keep possitive. I ust pray this isn't lupus or scleraderma in my lungs. Otherwise I might not get a transplant. With a 1:2560 ana somthing is going on somewhere. and a nucleolar pattern screams of scleroderma. Ok i'm nt gonna think about
that anymore. (I hope). It doesn't do any good to be negative.
Mel, Were we supposed to take notes? lol. All I remember is 20.000 for the work up. 350 thousand for the transplant 45 thousand for surgeons 15 to 20 meds for life at 3000.00 a month. and post transplant is 40 to 60.000 per year.
They recomend if you get on the list to have find raising for whatever the insurance doesn't pay and to have a blood drive. Like I said A lot of information!
Hippi, love ya, bo we havn't talked much lately one or the other has been sick. How are you feeling? I have been worried about
ya. You have a tendency to over do it. Thank you for your prayers and support I know you are alway there for me.
Stacie, actually Pat was the wild woman. I was quiet and reserved. We plan on getting together again when I go down there and have lunch at the cafeteria. We can blow spit balls accrossed the room. LOL.
Pat??????? what do you mean you ould have known me anywhere? Do I look like I sound? I'm the fat one that wonders around with a ? mark over my head lol. I am going to wear somthing really flashy next time so I'll look cool in your car. You guys should see her car! Oh yeah next time I buy lunch. How's the dollar menu at mc donalds sound lol. Yes you are right. I do owe ya. That woman took a bath in that stuff. Five more minutes I would have been an inpatient!
Anyway I'll keep ya all up to date as things go along. thanks again everyone
love ya all
Possible scleroderma. stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
Bear ye one another's burdens
Galatians 6:2 KJV