Puffy Eyelids....

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Regular Member

Date Joined Jan 2006
Total Posts : 64
   Posted 1/22/2009 8:29 AM (GMT -6)   
Hey everyone!
Hope all is well. I have been a member for a while but have been MIA. I have been having this issue for a little over a year now where my eyelids will swell for now good reason at all. Its usually the right one more than the left but I have had times when both were swollen at the same time. I have gone to my rheumy who has said it has nothing to do w my kidneys, have gone to an ENT who also did a CAT scan and has said that my sinuses and nose look perfectly clear. I have gone to an allergist who has concluded that I do not have any allergies. So... It remains. Does anyone have any idea what is causing this eye swelling or what I can do about it? Everything else seems stable (I was diagnosed Nov 30, 2005 and have been treated w Plaquenil ever since). Any advice???

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 1/22/2009 1:17 PM (GMT -6)   
Hi Koukla, I'm sorry your having problems. My eylids have done that from time to time but it has been awhile. Do you get puffy anywhere else? I retain a lot of fluids and sometimes it makes my eyes puffy. My hubby used to get stys a lot of that would cause his eye to get puffy. I really am at a loss but there is one thing I am not at a loss for. This stupid disease can cause anything to happen! Nothing surprises me anymore.
I hope someone here can help ya. Is it any time or when you wake up? Does ice help or have you found anything that makes it go away?
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
Bear ye one another's burdens
Galatians 6:2 KJV


Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 1/23/2009 3:14 AM (GMT -6)   
Make an appointment with your oncologist. It could be something serisous like tumors or necrotizing gramultous inflamation. The only smptom I had for my eye problems was my eyelid swollen shut. Took a biopsy and that is when I had been diagnosed with Wegener's, Necrotizing Gramultous Inflamation and tumors in my eye. Never listed the tumors, as I'm getting them treated.
Smurfy Shadow
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
Medications: Imuran, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D

Regular Member

Date Joined Oct 2007
Total Posts : 185
   Posted 1/23/2009 12:05 PM (GMT -6)   
My eyelids swell too... right now, I can feel the difference and sometimes I have a burning sensation that goes along with it....

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 1/25/2009 11:26 PM (GMT -6)   
I had this problem as a child/young adult, my eyelds would swell shut, especially at night, crust over and rip out my eyelashes trying to open them.I had to soak them with a warm wet washcloth until the crusts loosened and the puffiness got better. It was called blepharitis and considered to be benign, though now I still have swollen eyelids and have a lot of gallium uptake in my eyes, possible infection, cancer, sarcoid, other. The thyroid can make the eyelids swell alot too.

Definitely worth getting checked out. The gallium scan is sort of like PET scan, they inject you with radioactive dye and it shows infections and cancers due to uptake of gallium. They suspectedme of a granulomatous disease like Wegeners, I had active TB and am undergoing treatment for it but it also affects the eyes and causes granulomatous changes.

The burning and swelling Weleetka describes reminds me of sjogrens, which I also have,where the eyes are really dry, then they get really irritated. There are eyedrops the rheumy or eye doc can prescribe and Evoxac helps a little.

Sounds worth seeing somebody about. I hope you feel better soon.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

Regular Member

Date Joined Oct 2005
Total Posts : 315
   Posted 1/29/2009 6:01 PM (GMT -6)   
Yes, I get swollen eyelids a lot even before I ever took any medications. And like you, it seems to be for no good reason; I never know when it might happen. Sometimes it's mild and other times they've been so swollen you could hardly see my eyes at all. I, too, have no idea what could be causing it.
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