Arava is starting to work!

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Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 1/22/2009 12:29 PM (GMT -6)   
I woke up this morning and actually felt like a normal human being for the first time in years. I was working around the house before I even made my coffee, which is so unlike me, and suddenly stopped and realized that I didn't hurt all over. I've also been back on my gluten-free diet for a week or so and think that may be helping too. I'll know in a couple of weeks if my liver is able to tolerate this new med, so wish me luck! Wow! I didn't remember what this felt like!

Two days ago I fell flat on my face walking in my driveway and yesterday I had to take a cane with me. Today I feel like I could walk ten miles. I pray that the Arava continues to make me feel like this!

My physical therapy starts this afternoon and I'm anxious to find out what it's going to be like.

Do any of you have WII fit? I was looking at it online last night and it looks like such a terrific way to exercise at home and have fun at the same time. Ed McMahon, where are you?

I hope the rest of you are having a good day. It feels like Spring in Oklahoma. There is hope for us friends, if we can just figure out what our bodies need!


SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 1/22/2009 12:49 PM (GMT -6)   
Oh Pat that's great! I noticed the other day you wern't quite as study as you should have been. I'm sorry you feel. Ouch but I'm not surprised. Oh call me stupid but I have no idea what WII is. When I first read it I thought you were asking about world war 2. I was thinking she must have hit her head when she fell!
Oh regarding the post you left me yes I do have a hiatal hernia. But I've never had this problem before. Maybe the hernia is reacting to the low carb diet. I'm gonna give it another day and see what happens.
love ya
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
Bear ye one another's burdens
Galatians 6:2 KJV


Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 1/22/2009 6:32 PM (GMT -6)   

First, I am so glad that you are feeling better! I do have Wii Fit and it is great! It can be set at any ability level and is easy to follow. I am not very good at those "game things", but my kids and grandkids are, so the ability to play at different ability levels is a real plus! It does give you a workout, and you don't even realize that you are working. Did that make sense?
I am so glad that your medicine is working. I will say a little prayer that you can continue to tolerate it and do well.
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 1/22/2009 9:26 PM (GMT -6)   
((( Pat )))) that is great news! I am so glad the new med is working well for you, I pray your liver tolerates the med well and you continue to feel better each day! Take care
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 1/23/2009 7:11 PM (GMT -6)   

Yay, yay, yay yeah yeah yeah yeah    I'm so happy to hear good news.  I can imagine what a great feeling it was to be able to do things around the house and not hurt so bad.

We are actually looking for a Wii fit.  We got a Wii during the holidays and have been looking for the fit to go along with it, but they are sold out everywhere  My dad and his wife have one and we used it some over the holidays and it is pretty neat.  There are some very mellow low impact things to do which would be great for us lupies.

Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Melissa D.
Regular Member

Date Joined Aug 2008
Total Posts : 451
   Posted 1/23/2009 10:54 PM (GMT -6)   

Hi Pat,

I am so happy to hear that you have found some relief and perhaps "energy" from Arava. I had never heard of this medicine so I looked it up and was amazed by the write up! I'm amazed that more doctors don't prescribe this for us lupies.

For those of you that were unaware of what Araza was for as I was here's what I found...This medicine works by stopping the body from producing too many of the immune cells that are responsible for the swelling and inflammation.

I hope the med continues to make you feel better and better as the days go on! Oh, and if all that energy gets too bottled up and you feel like cleaning some more head on down to Texas you can clean to your hearts content at my house....hehehehe, I won't mind a bit! yeah yeah yeah

Please keep us posted.


Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 1/25/2009 12:18 AM (GMT -6)   
Hi Pat:

I'm so happy to hear that the Arava is working for you. That must be such a relief to know that you've found something that helps. I'll be praying that is continues to work for you for a long time.

I think it was great that you had the opportunity to meet Carol. It was great this past summer when Lynnwood, Mom46, Auntkay, Butterflake, and I were able to meet and have lunch together. It's great to have a face to put with the image we have in our minds. I'm sure you both had a great time.

I just wanted to let you know how happy I am for you and to remind you, not to over do it. When we feel good, we have a tendency to over do it and then we pay for it for several days. I'm glad that you're feeling better, I'm very happy for you Pat.

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

New Member

Date Joined Jan 2009
Total Posts : 2
   Posted 1/25/2009 3:31 PM (GMT -6)   
I don't have Lupus. I have R.A. I have been on Avara, for years. It has helped.
I'm new here and trying to find people that are receiving IV, Orencia. I'm new to that, also.
Thanks, Paint
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