PCP pretty convinced- Lupus , Taking plaquenil,Propranolol, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab. Mom of 2 boys 1 and 6. Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.
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Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1Plaquenil, Prednisone(15 6mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
"Life is far too important to be taken seriously." –Oscar Wilde, 1982
Post Edited (Lynnwood) : 1/25/2009 7:08:50 PM (GMT-7)
Post Edited (lisaann611) : 1/25/2009 9:28:30 PM (GMT-7)
i have been experience this too for the past 6 months and worse the last month almost daily, i have a mri toorrow for my brain head, but the doctor prescribed lyrica, and valuim for muscle relaxation. i personally did not benifit from either but everyone is different. i have to use an ice pack no lights and cry it out, but also when i take my blood pressure meds they dont come as often(clonidine).
I have SLE, raynauds, fibromaylgia, lupus nepritis,vasculits,chronic fatigue and chronic pain, and hypertension.
plaqnil,imuran,clonidine,endocet,oxycotin,nyastatin for my mouth sores
I don't know if this will help anyone but I've had those same headaches for weeks now. Nausea and dizziness also accompanied them. I saw a neurologist and he prescribed flexiril (cyclobenzaprine) at bedtime and/or every 8 hrs. It helped so much!!! He also suggested anvil but I took one and I didn't like how I felt. This is a med they used to use as an anit depressant (I think) and they have found it helps with headaches. The neuro told me that he sees alot of lupus patients suffering from these headaches and they are actually being caused by muscle problems and that is why he tried the flexeril. I've only been taking 1/2 a pill (5mg) at night and it is helping. I haven't even needed it during the day.
I hope maybe this could help somebody out there. I always LOVE to share when something finally helps me!
I have no idea if my headaches are lupus related or not, but I do get them frequently. I also get severe migraines, which have worsened over time. What I can say is...anytime I'm on any kind of steroids, I get absolutely NO headaches whatsoever. But when I stop them or injectable ones wear off, I get a horrible domino effect of migraines, usually every day which lasts for severel weeks (among many other symptoms). I found Imitrex works wonders for me, but one only gets 9 pills per script so I don't take them all the time, plus they are VERY expensive. But from what I notice on my own, I just have a feeling that many of my migraines seem to be inflammation related, being steroids totally stop them; and when I'm off the steroids, I get them like wildfire.