After bugging my mom for about two years now to get tested for lupus, she got sick enough she finally remembered to ask the doc to test her. Even after months on Entocort, she still had a high ANA. I knew she would. She's allergic to everything. She has something called Microscopic Colitis, which is supposedly colitis only able to be seen under a microscope. I thought it was all like that. I don't know. They are sending her to a lupus specialist now that her immune system is so hopelessly broken. If only they had done this earlier. She has been so sick, I'm just glad there may be some help for her to get her life back and feel better. She's had all the typical stuff, pleurisy, gi, liver, bladder, possibly kidneys and heart now, she is really puffy, and diabetes like condition and an inoperable pancreatic tumor that seems to be benign, she's had it for years now and it hasn't changed or caused major problems. I'm so glad that she may be able to get on something besides steroids for a while, even plaquenil because she keeps getting sick and has zero energy. She has bad neuropathy too.
I hope that she gets a good doc who looks at everything and figures out what is wrong so she can get better and we can know what is going on. Not only do I have problems but more importantly, my kids and my sister's kids have problems.
I really want her to get a TB test too. I know she doesn't want to get one because she doesn't want to take the medicine beause I've had trouble on it. She wouldn't though because her liver isn't bad like mine. My sister also had TB and went through the medicine. So there's two in close family. She needs to get tested. Anyway, I asked her if she'd been tested recently and she said "yes" and I asked her when and she said, "Oh, about 1973..." That's my mom. She's sweet, but I think she's scared. At least she got the lupus part done. I'm so proud of her. She has been so weak and foggy. And she's been on steroids for months now because her gi stuff just won't let up.
well, thanks for listening. I love you all here and wish you the best. I just don't want to lose my mom, I love her so much and she is just so sick, one thing after the other. She deserves a break.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids