Posted 1/29/2009 3:33 PM (GMT -6)
I will try and make this as breif as possible. I have been having symptoms for almost 6 years (since the birth of my daughter). Symptoms include: Horrible mouth ulcers (only get better w/pred), nose ulcers, fatigue, migraine w/aura, foot pain, joint pain (elbows, knees, esp lower back), finger swelling in am. Some what of a sun rash on my cheeks when out in the sun, but not raised, psoriasis and blood in urine.
Anyhow I was diag w/ RA in March of 06. Sed rate=44, anemic, RF=19. That drs office was crazy-3 hour waits. Fast fwd to 2008 new rheumy does not think its RA, no swelling etc. Labs normal but I was taking methotrexate prescribed by last dr.
Just went back in Tues, stopped metho, told me no way was this RA. I asked about Lupus and Anklosing Spond. Because of the lower back pain and mouth ulcers which I know are not usually part of RA. He said no way-discussed labs that were positive. He says "Well my wife's sed rate has been 50 for 7 years and nothings wrong with her." ???? He said that I dont even have enough syptoms to be in a clinical trial he is doing. He said all these diseases are over diagnosed and pretty much said all these other dr's don't know what the @#%$ they are doing.
He then prescribed me Lyrica which I am reading has horrible side effects. He was trying to tell me that stress causes psoriasis, well how come when I was on methotrexate I felt much better?!
He was telling me I need to deal with it and maybe see a pain dr coz its out of his scope.
Then the final thing he says is, "Maybe its Sjogrens Syndrome"???????
Anyway sent me for x rays of back and bloodwork. I am so frustrated I don't want a disease but some thing is very wrong!!
I am hoping to prove him wrong.
I even started crying which I never do, made me feel so belittled and dumb.
Thanks so much in advance I have learned a lot on here you guys are awesome!! Sorry so long!!