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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 1/30/2009 11:24 PM (GMT -6)   
I can't remember this being discussed before but maybe I just missed it. I am thirsty all of the time. I have to be drinking something. You'd think I'd be peeing like crazy but I don't. There are times when I have a coffee water and coke all at the same time. Herb tea anything. Is that a common side effect of this illness or possibly the meds? I have been tested I am not diabetic. All though the said at the transplant place that when they put you on all the anti rejection meds Cellcept,steroids, you could be diabetic when you come out. If Pat is reading this I think that was what they said.Wasn't it? Like steroids and stuff can cause your blood sugar to wack out.
anyway does anyone else struggle with this?

Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
Bear ye one another's burdens
Galatians 6:2 KJV


Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 1/31/2009 12:02 AM (GMT -6)   

Hey Carol,

I'm thirsty a lot because of my Sjogren's and my anti-D. Both make my mouth so dry.... But that is probably totally different from what you're experiencing.

Steroids will elevate your blood sugar, but that takes time, and high doses for an extended period. I've been on moderate to low doses of prednisone for 8 years now, and my blood sugar is totally normal.

I'm not sure what this thrist could be from? A mystery isn't it?



I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Moderator for the Lupus and Fibromyalgia forums

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 1/31/2009 11:01 AM (GMT -6)   
Carol, they did tell you that it's likely you could, or would, end up with diabetes. It's going to be a tough road for you, but in the end, you'll be so much better than you are now.
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 1/31/2009 12:30 PM (GMT -6)   

Hi! Everyone,

Being thirsty is often a side effect of meds, and Lord knows we all take enough of them. Drinking alot is ok, but fluid intake and urine output need to be balanced/equal, for optimum wellness. You can sometimes tell that your fluid intake is a problem if your legs and feet swell. And we lose fluid from our intestines, too. If your mouth and lips feel dry, then some moisturing lip gloss might help, too. I have taken care of alot of patients who were NPO, which means we couldn't let them eat or drink. I have found that holding sips of water in your mouth, or ice chips, as long as you can, so the water drizzles down your throat, rather than a swallow or guzzle, might help you feel less thirsty. And it wouldn't hurt to be sure you mention this to your primary care doctor. yeah Sometimes we inadvertently create a habit for ourselves, and there are alot of calories that hide in pops and tea drinks. The antioxidants in teas are very healthy. I like to steep green tea and then add fresh sprigs of mint, and then use less sugar. Be sure to crush or twist the mint to release the mint oil. I was given 1 small pot of mint, was cautioned it tends to overtake everything in it's reach, planted it along the semisunny side of my house, and have a patch of mint that now supplies 3 neighbors! Lemon or lime in the water might help soothe your thirsties, too. Polydipsia, too much thirst, is one of the 3 major signs of diabetes, so your doc will check that often. Hope you have a long stretch of feeling better, soon


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

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