Well in Nov 2007 I was diagnosed with SLE. I was doing ok...all I had was joint/muscle pain. Well 3 weeks ago I went for a check up with my rhuemy and we discoverd that I was having kidney problems. So my rhuemy sent me to a renal doctor. He had blood drown and did a P test and said that I needed to have a kidney biopsy. So 2 weeks ago thursday I was in the hospital getting the biopsy and then he had me on 3000 MG of Solu-Medrol. I got to leave the next afternoon. I do want to take the time and say that I think i have one of the best Rhuemy's out there. She came and visited me 3 times while I was in the hospital. She could have just brushed me off onto the Renal doctor but she didnt and for that i am very thankful :)! But back to the kidneys...The biopsy came back and they told me that out of 5 stages of Lupus nephritis I am at stage 3. They put me on 1000 mg of Cell-Cept, 80 mg of prednisone, iron pills, and still taking all the other pills I had been taking. The Renal doctor said he was trying this route over the Cytoxan because I am only 21. He said that it would probably make me sterile, wipe out my white blood count, and cause a lot more problems. He said if I did the cytoxan that I would be looking at weekly IV's, daily antibiotics, hormone pills, and much more. So I am hoping to everything that the cell cept works. about a week ago, my ankles,feet, and legs have started retaining water. I called and told the dr and they put me on water pills. Well as of now I am takin 80-100 mg of lasiks and from my knees and below are about 3 times the normal size and they feel like a giant stess ball. I have only P'd 4 times all day and have drank 3- 32 oz size bottles of water plus other liquids. Anyone have any suggestions about this? Since they have upped my prednisone I have gained 40 pds....and this was only 3 weeks ago. In the last 6 months I have gained 80 pds. I don't know what to do. Since I have taken the cell cept I cant stop shaking. My writing looks like I am a 90 year olds writing...all shaky and hard to read. On top of everything else I have decided to get a sinus infection and can't seem to get over it. Anyone have any suggestions about the retaining water, the weight gain, and the shakiness? I am starting to get depressed about everything and i am trying my hardest to keep my chin up but It is getting harder and harder!
thanks for letting me vent!!!
Systemic Lupus,lupus nephritis, Raynaud's Phenomenon, Carpal Tunnel
Voltaren, Ultram, Prednisone, Imuran, Ambien,Furosemide, Flexeril, Darvocet
"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away." (Revelations 21:4)
I Can do all things through Christ who gives me strenth! (Philippians 4:13)
Post Edited (aimsgirl16) : 1/31/2009 9:01:29 AM (GMT-7)