Next round of tests

Hi guys, I'm heading for OKC, for more tests today and to meet up with Patty Latty. One of my meeting is with a psychiatrist.Boy am I in trouble . Not looking forward to the 2 hour drive. I still have to comb my hair out and be out of here in a half an hour. I don't know if any of you have this problem but I get wiped out trying to comb my hair. Even when I use cream rinse my arms hurt and I run out of oxygen. I'm thinking about cutting it off.

wish me luck today

God Bless

carol

(come my hair out) What was that lol. I really need spell check. Than again it wouldn't have noticed that.

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 CAROL

Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis

Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL

 

Bear ye one another's burdens
Galatians 6:2 KJV

 

 

Post Edited (okie) : 2/11/2009 10:21:01 AM (GMT-7)

I keep my hair chin length because it gets so tiring and also it keeps falling out. Add in migraines and short hair was the answer to my problems. I still hate to see anyone cut off their hair because of the fatigue involved but my oldest donated to lacks of love recently and says she likes her hair shorter now when in the past she has always prefered long.

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Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

Thanks all, well it was a rough day all around. Stress test made me feel like my chest was going to explode.  Pat couldn't make it because she is sick. We have been getting hit from tornado's all day. There is a terrible one on the ground right now. way south of here but not all that far from Pat. She said she is doing ok, so I guess it's farther away from her. Unfortunately they are saying this last one has done alot of damage and injuries. If you wouldn't mind please keep everyone in the path of these storms in your prayers. Pat won't be on for awhile I assume until they get some power restored.

I'm tired I'll check back tomorrow.

hugs

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 CAROL

Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis

Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL

 

Bear ye one another's burdens
Galatians 6:2 KJV

 

 

Post Edited (okie) : 2/10/2009 7:29:50 PM (GMT-7)

HI Carol,

 

Oh sheesh..A phsych appointment eh?  I hate those.... You should totally cut your hair!! I did that a year ago and loved the cut. It was a really short pixie style cut. Very easy to maintain.  So why am I growing it back out now????? Hmmm.

 

Good luck with you appointment, and rest when you can!

 

Love

Ginny

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I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

 

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