stomach problems

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New Member

Date Joined Feb 2009
Total Posts : 3
   Posted 2/10/2009 6:07 PM (GMT -6)   
Hi Everyone!

Lately I've been having really horrible stomach problems every time I eat. I either get severely nauseous or my stomach feels like I've just taken a copious amount of laxatives. I've had SLE since '07... I'm 20 and a really busy student in college so I probably don't take the best care of myself. I made a doctor's appointment for Monday but I'm getting nervous as this has been going on for weeks now. Has anyone had similar experiences?

By the way, I'm only on plaquinel right now. I stopped taking Prednisone last July and that was also the last time I saw my doctor. Please don't chastise me, my mom does it enough!

Any help would be greatly appreciated. I keep my SLE a secret from everyone at school so I hope I can find some support here! Thanks!


Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 2/11/2009 10:44 AM (GMT -6)   
Welcome Kirsten, I think you should make an appt with your rheumy especially since it's been so long. Are you taking your plaq with food, if not you need to. But to answer your question, yes lupus can affect your GI tract. I am speaking from experience, you may want to keep a food diary to see if it is a particular food doing this to you, pay close attention to dairy and gluten (which is a protein found in wheat, rye, barley and oats). This will be very helpful in case you are sent to GI doc.

I do hope you get some answers soon. Take care, ask more questions and keep us posted on how you are doing.
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 2/11/2009 11:42 AM (GMT -6)   
Hi Kristin,
Stacie said everything I was going to! Haha... I have nothing more to add, except welcome to the forum! Let us know how you make out okay.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Moderator for the Lupus and Fibromyalgia forums

New Member

Date Joined Feb 2009
Total Posts : 3
   Posted 2/11/2009 6:10 PM (GMT -6)   
Thank you both so much! That link really related to what I've been experiencing. Hopefully it's one of the more benign problems rather that the scarier one!

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 2/11/2009 7:49 PM (GMT -6)   
Hi Kirstin and welcome to HW.
I had an Upper G I done last week as I have been having the same stomach problems for quite some time now. I am waiting for the results from that test to see if it showed anything.
Good luck and keep us posted when you do see the doctor.
Take care,
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 2/11/2009 9:37 PM (GMT -6)   
I recently had similar issues and after all the doctors & tests & so forth & so on -- basically there isn't anything wrong (at least with me) that slowing down, lowering stress, balanced eating, and a daily dose of OTC Privsac won't handle.

I'm not implying that you shouldn't see your doctors, just that there are things you can try on your own while waiting for an appointment.


Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 6mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex

Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

"Life is far too important to be taken seriously." –Oscar Wilde, 1982


Lupus Mom69
New Member

Date Joined Feb 2009
Total Posts : 3
   Posted 2/14/2009 1:32 AM (GMT -6)   
Don't beat yourself up about the prednisone.  That medication is not for everyone and it is very damaging with long term use for even those who can take it (really long time use of all of them is damaging).  If you do some research on lupus you will see that Nausea is a side effect of lupus; whoever, I believe it is a side effect of plaquniel also.  Don't stop going to your doctors.  I have already been through what you are going through-- those medications can be something else.  I can only take one plaquenil.  Two of them is too strong for me.  Although sometimes you get upset with the whole thing about going to the doctor, you need to go at least twice a year even when you are not having symptoms.  I go every three months because I have been having problems since I had a flare July 2007 and had to start taking my medication.  Predinisone did not help me either (it gave me 55 lbs), but sometimes the doctor have to try you on several drugs before they can find one that works for you.  If you have a high sed rate you may need to take the medications for a while to lower your sed rate.  Remeber the doctors can't cure you but by them running test and blood work they might can catch things before they get worst.  I really go to my doctors just for that.  When you think about it if you have patients taking drugs that give them the same side effect as their disease you really don't know how to help them?  The blood work, ultrasounds,etc. can at least let you know what is going on.  I ask for a copy when I go to my doctors office.  Just so I can know everything.  Sometimes they overlook somethings that they think are not important. confused
I am a 39 year old mother of three.  Who had been living with pain, fatigue and memory lost since 2001.  It took my doctors to 2006 to give me a diagnosis (lupus).  Since I have been put on drugs to help me with the disease I have went from a very active mother, wife, and supervisor making over $50,000.00/ year to making nothing and not so active (in my mind I want to be the person I once was but my body want let me).  Sometimes I forget my limitations because wanting to be that the old me (volunteering to help at school @ church), but my pain and extreme fatigue quickly reminds me that I have lupus.  There is no way to ignore it-- turst me I have tried.  I am currently waiting on SSD application approval.  This has really changed me and my families life.  It hurts me so bad that I can not work.  One thing I am glad about is my relationship with God.  If I did not have it through this I would be angery because I worked so hard to help my husband make sure our kids had a good life without any government help.  It's hard to stay positive when you feel so bad and sometime the doctors act like you are the problem when their drugs don't work.  Some people can live a normal life with lupus and I sure wish that I was one of them, but for this period of my life I am not.  To all of my lupus buddies keep the faith.  Seek not for understanding, just use this as a way to inspire others to enjoy life, be thankful for what they have, and keep God first.

New Member

Date Joined Jun 2008
Total Posts : 15
   Posted 2/15/2009 11:17 PM (GMT -6)   

Hi Stacie

I had similar problem in 2006 and had to see a gast.... doctor LOL they prescribed Nexium and that did the trick. I do know many lupus patients take Prilosec on the regular because of stomach need to worry sounds like one of the many symptoms of Lupus.

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