Don't beat yourself up about
the prednisone. That medication is not for everyone and it is very damaging with long term use for even those who can take it (really long time use of all of them is damaging). If you do some research on lupus you will see that Nausea is a side effect of lupus; whoever, I believe it is a side effect of plaquniel also. Don't stop going to your doctors. I have already been through what you are going through-- those medications can be something else. I can only take one plaquenil. Two of them is too strong for me. Although sometimes you get upset with the whole thing about
going to the doctor, you need to go at least twice a year even when you are not having symptoms. I go every three months because I have been having problems since I had a flare July 2007 and had to start taking my medication. Predinisone did not help me either (it gave me 55 lbs), but sometimes the doctor have to try you on several drugs before they can find one that works for you. If you have a high sed rate you may need to take the medications for a while to lower your sed rate. Remeber the doctors can't cure you but by them running test and blood work they might can catch things before they get worst. I really go to my doctors just for that. When you think about
it if you have patients taking drugs that give them the same side effect as their disease you really don't know how to help them? The blood work, ultrasounds,etc. can at least let you know what is going on. I ask for a copy when I go to my doctors office. Just so I can know everything. Sometimes they overlook somethings that they think are not important.
I am a 39 year old mother of three. Who had been living with pain, fatigue and memory lost since 2001. It took my doctors to 2006 to give me a diagnosis (lupus). Since I have been put on drugs to help me with the disease I have went from a very active mother, wife, and supervisor making over $50,000.00/ year to making nothing and not so active (in my mind I want to be the person I once was but my body want let me). Sometimes I forget my limitations because wanting to be that the old me (volunteering to help at school @ church), but my pain and extreme fatigue quickly reminds me that I have lupus. There is no way to ignore it-- turst me I have tried. I am currently waiting on SSD application approval. This has really changed me and my families life. It hurts me so bad that I can not work. One thing I am glad about is my relationship with God. If I did not have it through this I would be angery because I worked so hard to help my husband make sure our kids had a good life without any government help. It's hard to stay positive when you feel so bad and sometime the doctors act like you are the problem when their drugs don't work. Some people can live a normal life with lupus and I sure wish that I was one of them, but for this period of my life I am not. To all of my lupus buddies keep the faith. Seek not for understanding, just use this as a way to inspire others to enjoy life, be thankful for what they have, and keep God first.